The Myotonic Dystrophy Foundation (MDF) extends a heartfelt thank you to everyone who participated in our DM INSIGHT surveys. Your input is essential to helping us better understand the real-world experiences of people living with myotonic dystrophy (DM1 or DM2) and their healthcare providers.

DM INSIGHT ( Investigating Needs, Support, Gaps, and Healthcare Trends in Myotonic Dystrophy) was created to ensure the voices of our community guide the future of care, research, and policy. By sharing your experiences, you are helping to improve access to care, inform research priorities, and accelerate the delivery of new treatments to those who need them most.

We look forward to sharing the full results with you soon. This fall, we’ll be hosting webinars to present key findings, followed by the release of a comprehensive report. Your participation makes a real difference; thank you for helping shape a brighter future for the myotonic dystrophy community!

Below is a snapshot of who completed the surveys!