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Myotonic Dystrophy News

November 28,2023

The holidays are upon us! How can you make the biggest impact during this season of giving? Start or donate to a fundraiser to support DM for #GivingTuesday on November 28th.

November 28,2023

Esteemed DM Researcher Joins MDF Board of Directors & Chairs MDF's Scientific Advisory Committee

MDF is excited to announce Dr. Andy Berglund as the new Chair of MDF’s Scientific Advisory Committee and latest addition to the MDF Board of Directors! Dr. Berglund’s extensive research background and knowledge of myotonic dystrophy will help move MDF’s mission forward.

November 28,2023

Welcome Emily Romney, Special Projects Manager

MDF is delighted to introduce Emily Romney, MPA, as MDF's new Special Projects Manager! Emily’s years of public health nonprofit experience and education, coupled with her dedication and enthusiasm, make her a great fit for this role.

November 28,2023

Welcome Genevieve Wiegleb, Communications Associate

MDF is delighted to introduce Genevieve Wiegleb, MDF's new Communications Associate! With her diverse background and passion for healthcare and community outreach, Genevieve is poised to take MDF to new heights as we work toward our mission of community, care, and a cure.

September 29,2023

MDF Advocates Work to Secure Federal Myotonic Dystrophy Research Funding

On Thursday, September 7th, over 130 Myotonic Dystrophy Foundation advocates from 23 US states and five other countries visited Congress on Capitol Hill in Washington, D.C. to ask for more federal research funding for myotonic dystrophy. We blanketed Capitol Hill and completed over 100 congressional meetings, spreading awareness of the seriousness of myotonic dystrophy and the urgent need for treatments and a cure.

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.