Learn to Advocate for Federal DM Research Funding - MDF Advocacy Week 2022

Originally presented on April 22, 2022.

Join the Myotonic Dystrophy Foundation's National Advoccy Committee (NAC) for the first of several exciting webinars on how advocates can increase myotonic dystrophy (DM) awareness, grow DM research funding, and advance policies to accelerate the approval of drugs to treat and eventually cure DM.

Click here to download the presentation slides. (PDF)

Click here to download MDF's Congressional Requests for 2022.

This webinar has been designed to prepare advocates for our first ever Myotonic Dystrophy Foundation Advocacy Week on May 2-6th! Advocates from across the country will be meeting virtually with their members of Congress and staff urging them to continue DM federal research funding through the Department of Defense Peer Reviewed Medical Research Program (PRMRP), secure new DM research funding as part of the Congressionally Directed Medical Research Program (CDMRP) and initiate a new NIH research effort focused on DM and related repeat expansion diseases. Click here to learn more about MDF's Advocacy Week!

Learn how you can educate your Senators and Representatives about DM and successfully build relationships with them and their staff to win their support for our agenda. Get step by step instructions on:

  • How to schedule a meeting with your member of Congress and their staff either back home or in D.C.
  • The dos and don’ts of a congressional meeting.
  • How to effectively follow-up after your meeting.

Find more information about MDF's ongoing advocacy efforts.