MDF is off to an exciting start to 2022! We hope you can join us for our annual community wide events! Save the dates and learn more about each event below.
Rare Disease Day
Join us on February 28th to make myotonic dystrophy one of the most prominent disease voices raised during Rare Disease Month! Rare Disease Day is a worldwide event designed to improve the lives of millions of people living with rare diseases by raising awareness among policy makers, the scientific community and the general public. It was launched in 2008 by EURODIS and takes place on the last day of February each year in more than 65 nations. The U.S. program is led by NORD.
Learn more about DM focused Rare Disese Day events as they become available.
International Myotonic Dystrophy Family Day
Celebrate with your extended DM family on July 23rd! Originally created in 2016 by Cure DM Myotonic Dystrophy UK, DM Family Day is for the community to come together in support on one another for a day of fun, to share stories and experiences within groups, and to connect with others and feel the power of being a part of of something bigger.
MDF Annual Conference
Mark your calendars for September 9th & 10th for the 2022 Myotonic Dystrophy Foundation Annual Conference! We hope you can join us at Paradise Point in San Diego, CA. This year's conference will include sessions exploring symptom management, research and drug development, updates from the Foundation, and more!
Learn more about the 2022 MDF Annual Conference page for updates as they become available.
International Myotonic Dystrophy Awareness Day
Celebrate September 15th and help change the future of myotonic dystrophy! In 2021, a Global Alliance of over 50 myotonic dystrophy-focused organizations united to declare September 15th International Myotonic Dystrophy Awareness Day. The day aims to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy.
Get inspired and check out all the ways our amazing community got involved in 2021!
If you are a group, organization, hospital, academic institution or company interested in officially joining the Global Alliance to raise awareness of myotonic dystrophy and would like to add your name and logo to the team, please complete this form.
MDF Gala
We hope you can join us on October 20th to celebrate and help raise funds for the Myotonic Dystrophy Foundation's critically-important work on behalf of individuals and families living with myotonic dystrophy. We are thrilled to announce the event will be held at Sony Hall, a one-of-a-kind concert hall located in the heart of New York City. Everyone is welcome so mark your calendar for 2022 MDF Gala!
Check the 2022 MDF Gala page for updates as they become available.
Find All Our Events on the MDF Calendar!
Every day new events and support opportunities are being created for the myotonic dystrophy community!
Find latest details on all our upcoming events on the MDF Calendar.
Questions? Contact us at info@myotonic.org or phone us at 415-800-7777.