New Diagnosis? Start Here



October 20, 2016

Our 2nd Annual MDF Gala was a tremendous success, thanks to the many heroes in our special myotonic dystrophy (DM) community. More than 250 guests celebrated MDF’s progress since its first gala in 2013, raising $500,000 to drive the next phase of our Care and a Cure mission for families living with myotonic dystrophy.

October 14, 2016

Ginny Morriss, Ph.D., is exploring whether reducing levels of the CELF1 protein, which are abnormally high in DM1-affected skeletal muscles, has a positive effect on these muscles. She’ll be studying mice in which disease-causing repeat expansions can be induced at any age.

October 13, 2016

Jazzy Wright joined MDF in October 2016 as the organization’s Communications Manager. Jazzy will also manage the MDF communications strategy, and produce all internal and external communications pieces for the organization.

October 13, 2016

Sarah and David Berman had never heard of myotonic dystrophy until their baby Zoé was born with the congenital-onset form of the disease, which is known as CDM.


© Myotonic Dystrophy Foundation. All rights reserved.