MDF is excited to introduce “Understanding Myotonic Dystrophy”, a new series of short educational animations designed to educate people living with myotonic dystrophy (DM) and their healthcare providers! Our third animation “Understanding Myotonic Dystrophy – Inheritance of Myotonic Dystrophy Type 2 (DM2)”, explains how DM2 is passed down from generation to generation and highlights the importance of genetic testing.

MDF is bringing our Conference to a city near YOU in 2026! Individuals with DM of all types and ages, their families, and experts will all gather at these one-day conferences to explore the latest research, discuss strategies for better living, and to end isolation through community.

The Global Alliance proudly marks the fifth annual International Myotonic Dystrophy Awareness Day, bringing together over 60 organizations from 17 countries across five continents in a unified effort to raise awareness, promote research, and advocate for improved care for individuals and families affected by myotonic dystrophy.

The RNA Institute at the University at Albany’s College of Arts and Sciences hosted its annual “RNA Day” celebration on Friday, August 2nd. This day brought exciting news and celebrations for myotonic dystrophy (DM) research!