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News and Stories


July 18, 2017

Learn about the Laue family and their connection to myotonic dystrophy.

July 14, 2017

In June of this year, MDF initiated a new program called “MDF DM Days” to bring together clinicians, researchers and myotonic dystrophy (DM) family members, and provide close-to-home access to educational sessions.

July 13, 2017

MDF and the International Myotonic Dystrophy Consortium (IDMC) Will Co-host a Workshop on CNS Endpoints for DM Clinical Trials - Add Your Voice

July 13, 2017

At the 2017 MDF Annual Conference, the Myotonic Dystrophy Foundation (MDF) will offer MDF community members the opportunity to learn first-hand about U.S. federal and state benefits that can be used to support individuals affected by myotonic dystrophy.

July 6, 2017

MDF staff recently attended the 2017 BIO International Convention hosted by the Biotechnology Innovation Organization (BIO). BIO offers a partnering track to patient advocacy groups, enabling meetings with companies having potentially mutual interests.

July 6, 2017

Preclinical animal efficacy data used to support the scientific rational for Ionis’ phase 1/2 clinical trial in DM1 was just published.

July 6, 2017

New fly models show a DM2 phenotype at least as severe as DM1 and may provide a platform for studies of genetic modifiers and candidate therapy screening in DM.

July 6, 2017

A large retrospective study helps clarify genotype-cardiac phenotype relationships in adult DM1.


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