Welcome to the MDF

The Myotonic Dystrophy Foundation (MDF) is a patient advocacy group dedicated to leading and mobilizing resources toward effective management, treatment, and a cure for myotonic dystrophy, a common form of muscular dystrophy. This inherited disorder can appear at any age and can manifest itself differently in each individual. It affects not only muscle groups but also many other body systems such as the heart, lungs, brain and GI tract, among others. With guidance from our advisors, who together have devoted more than ninety years to the research and treatment of myotonic dystrophy, the MDF offers information to help navigate the disease process.

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Latest News and Events

July 19, 2010
Run America IV - Raising Awareness for Myotonic Dystrophy

In 2002, Run America was started to support a friend with myotonic dystrophy. This year, on August 7-15, founding MDF board member, Barry Wald, along with 20 friends will ride around Lake Michigan to raise money and awareness for myotonic dystrophy.

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July 19, 2010
Miles for Muscles - Raising Awareness for Myotonic Dystrophy

Mike Hamlin, a one time avid cyclist with myotonic dystrophy, is inspiring folks to join him on this 100 mile ride October 9, 2010 as a part of the annual Sea Gull Century ride. Mike will be participating on this ride on his recumbent trike.

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June 22, 2010
Call for 2010 MDF Postdoctoral Fellowship Applications

The Myotonic Dystrophy Foundation (MDF) is pleased to announce the 3rd annual program to support innovative research on myotonic dystrophy. On January 1, 2011, the MDF will award two postdoctoral research fellowships, each providing two years of support at $50,000 per fellowship, per year.

The goals of the MDF are to stimulate research that is closely aligned with its core mission: to lead and mobilize resources toward effective management, treatment and a cure for myotonic dystrophy through education, advocacy, and research.

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May 21, 2010
Empower 2010: Myotonic Dystrophy Family Conference

Registration is OPEN! The Myotonic Dystrophy Foundation (MDF) is pleased to announce its collaboration with the Paul and Sheila Wellstone Muscular Dystrophy Center at the University of Minnesota to present Empower 2010 - Myotonic Dystrophy Family Conference, August 13-15, 2010. This conference will bring important research updates, information about diagnosis, treatment, and daily living issues to assist individuals living with myotonic dystrophy, families, health care providers and the community. Print the Latest Agenda for Empower 2010 (updated on 7/15/10)

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May 7, 2010
Heart Drug Effective for Treating Symptom of Myotonic Dystrophy

ROCHESTER, NY (May 7, 2010)  A medication most often used to treat heart arrhythmias also reduces a central symptom of myotonic dystrophy, the most common type of muscular dystrophy in adults. The findings about the medication mexiletine – a chemical cousin of lidocaine – were published May 4 in the journal Neurology, a publication of the American Academy of Neurology.

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 Note: Content on this site was developed through collaborative efforts of internationally respected experts in the field of myotonic dystrophy, and by patients and families whose lives and loved ones have been touched by this disease. All disease content has been read and approved by  members of the MDF Medical and Scientific Advisory Committee. 

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