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Digital Academy

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On Being a Fearless Caregiver
This webinar addresses issues related to caregiver advocacy – partnering with the healthcare team and other family members – as well as self-care and managing the role of a caregiver. 
 
 
4/16/18 video
Family Planning (2016 MDF Annual Conference)

Dr. Karen Blakemore, M.D., director of prenatal genetics at the Prenatal Diagnostic Center in the Johns Hopkins Department of Gynecology and Obstetrics, Julie Cohen, certified genetic counselor in the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute, and Alice Schindler, MS, genetic counselor at the National Institutes of Neurological Disorders and Stroke (NINDS), provide a comprehensive overview of family planning strategies and considerations for families living with myotonic dystrophy – at the 2016 MDF Annual Conference.

4/16/18 video
Nutrition Issues Related to DM

In this webinar, Kari Lane, RD, CNSC, Clinical Dietitian at the University of Utah, discusses nutritious diets to maintain heart and GI health for people living with myotonic dystrophy.

4/16/18 video
Planning for Your Future: 1

Travis Finchum, ESQ, Beth W. Patterson, CPA and Lansing Roy, J.D.

4/16/18 video
The U.S. Drug Testing & Approval Process (2013 MDF Annual Conference)

Dr. Doug Kerr, M.D., Ph.D., of Biogen-Idec, describes the U.S. process for taking a drug from testing to approval.

(View a PDF of Dr. Kerr's presentation)

4/16/18 video
Hormone Issues Associated with DM1 & DM2

Dr. Richard Moxley of the University of Rochester addresses different endocrine problems that challenge patients with mytonic dystrophy types 1 & 2, how they can lead to symptoms and be associated with alterations in blood test measurements, known treatments to mitigate potential symptoms and future opportunities to develop better understanding of these endocrine problems.

4/16/18 video
Occupational Therapy (2016 MDF Annual Conference)

 

Dr. Cynthia Gagnon, Ph.D., a professor and member of the interdisciplinary research group on neuromuscular disorders at the University of Sherbrooke in Quebec, CA.

4/16/18 video
Planning for Your Future: 2

Travis Finchum, ESQ, Beth W. Patterson, CPA and Lansing Roy, J.D.

4/16/18 video
Beyond ADL (2014 MDF Annual Conference)

Cynthia Gagnon, PhD, OT, of the Université de Sherbrooke, discusses ways to modify daily living activities to best benefit those living with DM.

Click here to view slides from this presentation.

4/16/18 video
Staying Strong - DM & Exercise Panel (2015 MDF Annual Conference)

A panel of physical therapy professionals and people living with DM discuss ways to stay physically fit.

Panel discussion by Dr. Katy Eichinger, PT, DPT, University of Rochester; Mike Hamlin, DM Community Member; Dr. Leslie Krongold, EdD, Myotonic Dystrophy Foundation.

4/16/18 video

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