It is with great sadness and heavy hearts that the MDF mourns the passing of our founding chairman, Shannon Lord, who passed away on June 4, 2013. Shannon is survived by her husband, Larry Lord and her two adult sons, Hunter and Ashby.
Maurice Swanson, Ph.D., Professor of Molecular Genetics and Microbiology at University of Florida, Gainesville, and a team of researchers have found that the muscleblind-like 2 (MBNL2) protein in the central nervous system (CNS) may be responsible for the neurological impacts of myotonic dystrophy
We recently talked about the development of Stanford's new Center for DM Care and Research with Dr. John Day, Professor of Neurology and
MENLO PARK, CA (February 28, 2013) The Myotonic Dystrophy Foundation (MDF) announced today that it has launched the Myotonic Dystrophy Family Registry (MDFR), a new online database designed to help both individuals living with myotonic dystrophy (DM), and the researchers and medical professionals studying the rare disease.
On Rare Disease Day 2013 -- February 28th -- you'll be able to take a more active role in the fight against myotonic dystrophy (DM) by joining the new Myotonic Dystrophy Family Registry (MDFR).