News

07/20/2015 - 9:56am

The MDF Annual Conference is the best place for families looking for the most current information available on disease management, networking opportunities and support. New this year is a track focused on the latest in DM research, as well as workshops, roundtables and other programs for researchers from industry and academia.

07/16/2015 - 2:59pm

Since the discovery of the mutation causing DM1 was discovered in 1992, researchers have been trying to understand how the DNA mutation causes such a wide variety of symptoms. A new study may have found a genetic link between DM and Duchenne muscular dystrophy, potentially explaining the progressive muscle deterioration that occurs in adults with DM1

07/08/2015 - 4:51pm

On Friday, July 10, 2015, the 21st Century Cures Act (H.R. 6) passed the US House of Representatives with an overwhelming 344-77 majority!

07/06/2015 - 12:31pm

Participating in a clinical trial or research study is a major responsibility, so we have partnered with the leaders of current clinical trials and research studies to give you the best information about successful participation.

06/24/2015 - 9:04am

MDF Executive Director Molly White and Research Director Sharon Hesterlee recently attended the International Myotonic Dystrophy Consortium meeting in Paris. Sharon has created a report-out to the community on a selection from the more than 160 presentations and posters, to keep you apprised of some of the newest updates and information. 

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