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10/22/2014 - 12:56pm

This year’s oversold conference, held last month in Washington, DC, was arguably the most successful conference to date with unparalleled participation from researchers, industry and federal agency representatives and a number of programmatic “firsts.” 

10/16/2014 - 3:36pm

Dr. John Vissing and his colleagues at the University of Copenhagen recently tracked a group of 68 adults with myotonic dystrophy type 1 (DM1), measuring their endocrine function change over 8 years.

10/09/2014 - 5:27am

The Myotonic Dystrophy Family Registry had a phenomenal first year, thanks to the robust participation of MDF community members. The Registry has enrolled almost 1,300 registrants, and along the way has served as a critical tool for clinical trial recruitment discussions and important DM research projects. 

09/26/2014 - 3:31pm

On Friday, September 26, 2014, the MD-CARE Amendments were signed into law by President Obama!

09/26/2014 - 11:25am

The 2014 MDF Annual Conference, which occurred Friday, September 12 and Saturday, September 13, was a singular success, featuring oversold registration, an unparalleled number of researchers, pharma and biotech partners and federal agency representatives, and a number of impressive programmatic "firsts."