Sort news by
11/05/2014 - 3:04pm

Each year just before the holidays, we reach out to our community to ask for your support. Your contributions help us continue our efforts to find care and a cure for DM. Read our annual appeal to see what's on the horizon for 2015!

10/22/2014 - 12:56pm

This year’s oversold conference, held last month in Washington, DC, was arguably the most successful conference to date with unparalleled participation from researchers, industry and federal agency representatives and a number of programmatic “firsts.” 

10/16/2014 - 3:36pm

Dr. John Vissing and his colleagues at the University of Copenhagen recently tracked a group of 68 adults with myotonic dystrophy type 1 (DM1), measuring their endocrine function change over 8 years.

10/09/2014 - 5:27am

The Myotonic Dystrophy Family Registry had a phenomenal first year, thanks to the robust participation of MDF community members. The Registry has enrolled almost 1,300 registrants, and along the way has served as a critical tool for clinical trial recruitment discussions and important DM research projects. 

09/26/2014 - 3:31pm

On Friday, September 26, 2014, the MD-CARE Amendments were signed into law by President Obama!