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NIH Evaluates Wellstone Muscular Dystrophy Research Centers Program

MDF strongly encourages patients, families, clinicians, and researchers to respond to the NIH’s Request for Information on the Wellstone Center Program.

NAS Releases Report on Patient Involvement in Research

A new U.S. National Academy of Sciences (NAS) report—Returning Individual Research Results to Participants: Guidance for a New Research Paradigm—should be read by all clinical researchers.


The OPTIMISTIC clinical evaluation of exercise training and cognitive behavioral therapy paradigms comes to publication.

Therapeutic Gene Modulation: Targeting Muscleblind’s Regulation by miRs

Feasibility is demonstrated in mammalian models for a therapeutic strategy that increases MBNL by sequestering MBNL-suppressive miRs.

PRMRP-A New Funding Source for DM Research

MDF strongly encourages DM investigators to apply for research grant support from the Department of Defense's Peer-Reviewed Medical Research Program (PRMRP).

Senators Play Key Role in Getting DM Access to New Federal Research Funds

The Myotonic Dystrophy Foundation honored both Senator Dick Durbin and Senator Diane Feinstein with MDF Congressional Leadership Awards for their outstanding work and support in getting myotonic dystrophy added as an eligible research area in the U.S. Department of Defense (DOD) Peer-Reviewed Medical Research Program (PRMRP) for Fiscal Year 2018 (FY18).

Mechanisms of Muscle Wasting in DM1

Insights on the mechanisms that underlie muscle atrophy in DM are provided by studies in a new mouse model.

Similar Molecular Mechanisms, But Divergent Phenotypes in DM1 and DM2—Why?

The RNA binding protein, rbFOX1, competes with MBNL in binding to CCUGexp, but not CUGexp repeats, and thereby mitigates DM2.

Important New Review Articles on DM

The review journal, Frontiers in Neurology, is publishing six new articles on myotonic dystrophy.

Update: Research Funding Opportunity from the PRMRP

MDF updates information on the Department of Defense’s Peer Reviewed Medical Research Program first described in the April Research News.


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