Maurice Swanson, Ph.D., Professor of Molecular Genetics and Microbiology at University of Florida, Gainesville, and a team of researchers have found that the muscleblind-like 2 (MBNL2) protein in the central nervous system (CNS) may be responsible for the neurological impacts of myotonic dystrophy
Fundraise
Why Should I Be a Fundraiser?
By fundraising for MDF, you can empower yourself and your family and make a difference in the fight against myotonic dystrophy, helping increase the funding available to support the DM community and for meaningful research into treatments and a cure. Events can be gala dinners or foot races that can take a lot of planning, or simple letter or email campaigns to friends and family. Hosting an event is fun, and MDF is here to help. We have resources to help you get organized, plan, promote, and execute your event or activity. We can even help you choose an activity that is right for you and your family.
How Will MDF Benefit?
MDF programs exist to enhance the quality of life of people living with myotonic dystrophy, and maximize research efforts focused on treatments and cure for this disease. We do this by providing support services to people living with DM, raising awareness about the disease in the general population and with legislators, educating families and medical professionals about the disorder and advocating for increased funding for myotonic dystrophy research and patient support. Your fundraising efforts are vital to enabling MDF to continue this important work.
How Do I Get Started?
Request a copy of the new MDF Fundraiser's Guide. The Guide takes you through the process, outlines the steps you’ll take and provides valuable resources to help you achieve success.
Then, give us a call. We'll help turn your ideas into a plan, answer your questions and provide the resources and support you need. Please contact Haley Kennard, Development Associate, at 415-800-7777.
Dine Out for DM and Raise Critically-Needed Funds for MDF!
Throughout 2013, MDF is partnering with members of the DM community to hold “Dine Out For DM” events at their favorite local restaurants. Invite your friends, family and community leaders to join you for a fun, easy fundraiser to benefit MDF and raise awareness of myotonic dystrophy in your community.
This type of event can be simple to organize and and fun to do. Many local restaurants and national restaurant chains offer what’s called a benefit night, where 10-20% of the night's receipts go to a designated 501(c)3 charity, like the Myotonic Dystrophy Foundation. Some restaurants will designate a particular time frame, such as 5-8 PM, where all receipts count toward the donation, while others will require patrons to provide a flyer in order for a receipt to be counted. In some cases, the restaurant will print flyers for you, and may share in the responsibilities of publicizing the event. Benefit nights help the restaurant too, by attracting new customers, filling seats on slower nights (like mid-week) and allowing them to project a positive image in your community.
Interested in hosting a Dine Out for DM event? MDF staff are here to help. For details on how to get started, click here or contact the Foundation at info@myotonic.org.
