Thomas (Tom) McPeek

Board Member
DM2 Virtual Support Group

Tom McPeek currently volunteers as MDF’s DM2 Virtual Support Group Facilitator. Unlike most regional support groups that are geographically focused, this group is for anyone diagnosed with DM2, no matter what City, State or even Country you live in. Tom was diagnosed with Myotonic Dystrophy Type 2 in 2006 and has been active with the Myotonic Dystrophy Foundation for over 10 years. He was elected to the Board in December of 2020.

Tom presented at the Food and Drug Administration’s 2016 DM Patient-Focused Drug Development Meetings in Arlington VA and has been involved in numerous presentations and panels for the Myotonic Dystrophy Foundation’s Annual Conferences and other venues. Tom remains active in his local Ohio community and continues to volunteer his time with organizations that serve his community. Tom’s hobbies include dog training, hunting, fishing, and working outdoors. Tom believes the key to surviving with DM2 is to stay positive and remain as physically active as your body will allow. Read more about Tom, his family, and his work in the DM community.

Tom McPeek is the DM2 Virtual Support Group Facilitator and a moderator for the MDF DM2 Facebook Group. Unlike our regional support groups, these groups cater to anyone living with DM2 and their caregivers regardless of where they live. Tom was diagnosed with Myotonic Dystrophy Type 2 in 2006 and has been active with the Myotonic Dystrophy Foundation for over 10 years. Tom was one of two DM2 presenters at the Food and Drug Administration’s 2016 DM Patient-Focused Drug Development Meetings in Arlington VA and has been involved in numerous presentations and panels for the MDF Annual Conferences and other venues. He was elected to the MDF Board of Directors in December of 2020.

Although Tom is currently unable to work do to DM2, he remains active in the local community and continues to volunteer his time with local organizations that help the community. Tom’s hobbies include dog training, hunting, fishing, and working outdoors. Tom believes the key to surviving with DM2 is to stay as physically active as your body will allow.