At the 2013 MDF conference, Dr. Tom Cooper of Baylor College of Medicine presented a summary of the ninth meeting of the International Myotonic Dystrophy Consortium (IDMC).
Most days you will find the MDF team in our San Francisco office, driving initiatives focused on Care and a Cure for myotonic dystrophy. Occasionally, though, MDF attends conferences and other events to advocate for DM treatments and raise funds for research and community support programs.
Dr. Peter Harper wrote what many people living with DM believe is the best lay overview of myotonic dystrophy in existence in a book entitled The Facts: Myotonic Dystrophy.
Researchers have published several recent studies on advances in DM research.
Researchers from the University of Rochester recently summarized the “diagnostic odyssey” experienced by a group of 814 individuals with myotonic dystrophy.