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01/28/2016 - 7:43am

Rare Disease Day on Feb 29th gives us an opportunity to shine a spotlight on DM. MDF has activities planned for the entire month of February. Find out how you can join us in speaking out about DM.

01/28/2016 - 7:51am

In honor of Rare Disease Day Feb 29, MDF is rallying the community to drive research for Care and a Cure. The first 50 DM patients to sign up for a trial or study have a chance to win your own monogrammed lab coat autographed by leading DM researchers. In DM research, Every Body Counts: Can we count on you? Click here now to participate.

01/28/2016 - 7:35am

The use of anesthesia raises special risks to DM patients, which include heightened sensitivity to sedatives and analgesics. Serious complications are most common in the post-anesthesia period when risk of aspiration and other complications are increased. Click here for a handy, one-page summary of the anesthesia guidelines to share with your clinician and anesthesiologist. The complete "Practical Guidelines for the Anesthetic Management of a Myotonic Dystrophy Patient" will be available in February 2016.

01/22/2016 - 8:44am

Steven and Kelly Bormann are kicking off the new year with their 2nd Annual Poker and Paint Party February 20th in Lenexa, Kansas to raise DM awareness and funds in honor of their late daughter, Anna. To join the Paint and Poker Party fun in person, please click here.

01/14/2016 - 12:32pm

Word came from the FDA on January 14th that it would not approve the new drug application for "Kendrisa,"  Biomarin's antisense-oligo based drug for Duchenne muscular dystrophy.


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