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08/06/2014 - 9:32am

The MDF Blog needs you! We are seeking submissions from interested MDF community members who would like to provide guest blog posts for the MDF Blog. MDF will launch the MDF Blog with the following three initial subject areas: DM2, DM1 Adult Onset and Caregivers.

06/09/2014 - 8:19am

Isis Pharmaceuticals, Inc. announced today that it has launched a Phase 1 clinical trial for ISIS-DMPKRX. ISIS-DMPKRX is designed to reduce the production of toxic dystrophia myotonic-protein kinase (DMPK) RNA in cells, including muscle cells, for the treatment of Myotonic Dystrophy Type 1 (DM1).

05/05/2014 - 10:37am

Eric Jensen and his three-year-old son River will be cycling through the state of Iowa in the Des Moines Register’s Annual Great Bicycle Ride Across Iowa (RAGBRAI), July 20-26. The Jensens have named their ride “River’s Ride” and are dedicating their journey to families affected by DM.

03/05/2014 - 9:20am

Val Reeber - who is living with DM2 - and her husband and caregiver Bob share their story, and how DM2 has impacted their family.

02/19/2014 - 4:10pm

Dr. John Day welcomed more than 100 people to the Stanford University School of Medicine's first annual California Myotonic Dystrophy Information Meeting on February 1, 2014.

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