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MDF is proud to announce Emma Shea of the University of Florida, Gainesville, Florida, US as one of MDF UK's 2023 Fellowship Recipients!

MDF is proud to announce Tatiana Koike, PhD of the Université de Montreal, Quebec, Canada as one of MDF UK's 2023 Fellowship Recipients!

On Rare Disease Day 2023, the Global Alliance for Myotonic Dystrophy Awareness proudly stands together to celebrate the remarkable strength and resilience of the myotonic dystrophy community. With over 57 organisations focused on advancing the understanding of and care for this rare genetic disorder, the Alliance continues to be a beacon of hope for people living with myotonic dystrophy (DM), their families, and healthcare professionals around the globe.

We are overjoyed to welcome Mindy Buchanan, to the team! Dedicated to working with populations affected by highly variable diseases, Mindy brings with her nearly twenty years of experience in non-profit and academic medical center settings, including a wealth of knowledge on leading educational, psychosocial, and peer-to-peer support programs.

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