We are thrilled to announce the 2022 MDF Gala has raised over $1.35 million to help fund critical DM programs and services! A special thank you to all of our Gala Donors & Sponsors who have helped advance MDF's mission of Community, Care, and a Cure.

Ruth lives with myotonic dystrophy and has a background in community health programming, public health policy, and clinical social work; she obtained her Master of Public Health and Master of Social Work from the University of Minnesota and is excited to join us!

The 2022 MDF Annual Conference - sometimes called the “family reunion” - took place September 9th & 10th, at Paradise Point in San Diego, CA. With over 625 registrants, and hundreds of participants in-person & online - joining from 39 US States and 14 countries - we are thrilled that so many of our incredible community members and professionals could once again unite to advance the MDF mission of Community, Care, and a Cure!

Nick Gulch is a student at the Owens Community College, where he is pursuing a degree in Broadcast Media Technologies. With a recently won scholarship, Nick has found an intersection between his passion for podcast-making and his connection with the rare disease community.