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Digital Academy

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On Being a Fearless Caregiver

This webinar addresses issues related to caregiver advocacy – partnering with the healthcare team and other family members – as well as self-care and managing the role of a caregiver. 

5/15/19 video
Family Planning (2016 MDF Annual Conference)

Watch Family Planning, a video from the 2016 MDF Annual Conference.

4/16/18 video
Nutrition Issues Related to DM

In this webinar, Kari Lane, RD, CNSC, Clinical Dietitian at the University of Utah, discusses nutritious diets to maintain heart and GI health for people living with myotonic dystrophy.

4/16/18 video
The U.S. Drug Testing & Approval Process (2013 MDF Annual Conference)

Dr. Doug Kerr, M.D., Ph.D., of Biogen-Idec, describes the U.S. process for taking a drug from testing to approval.

5/17/19 video
Occupational Therapy (2016 MDF Annual Conference)

Watch Occupational Therapy, a video from the 2016 MDF Annual Conference.

10/26/18 video
Beyond ADL (2014 MDF Annual Conference)

Cynthia Gagnon, PhD, OT, of the Université de Sherbrooke, discusses ways to modify daily living activities to best benefit those living with DM.

5/15/19 video
Staying Strong - DM & Exercise Panel (2015 MDF Annual Conference)

A panel of physical therapy professionals and people living with DM discuss ways to stay physically fit.

Panel discussion by Dr. Katy Eichinger, PT, DPT, University of Rochester; Mike Hamlin, DM Community Member; Dr. Leslie Krongold, EdD, Myotonic Dystrophy Foundation.

4/16/18 video
DM and the Brain (2016 MDF Annual Conference)

Watch DM and the Brain, a video from the 2016 MDF Annual Conference.

10/26/18 video
Congenital DM - The Medical Team

An MDF community member and mother describes the medical team she has assembled for her daughter, Kate.

4/18/18 video
The Clinical Trial: Real-Life Experiences (2013 MDF Annual Conference)

Pat Furlong, CEO of Parent Project Muscular Dystrophy, will share the experiences of Duchenne community members who have participated in clinical trials.

5/15/19 video

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