We simply cannot express the strength of our gratitude for everyone who participated in the Myotonic Dystrophy Foundation (MDF) 2020 Virtual Gala! We are truly blown away by the incredible outpouring of generosity and support.
Dr. Katharine Hagerman and Lisa Harvey-Duren share their experience with the Stanford Biobank. Donating the tissue or other clinical specimens of a loved one will help advance treatments for myotonic dystrophy and provides hope that our family and friends will have a better future.
The U.S. Supreme Court met the week after the 2020 election to hear oral arguments in a case which could overturn the Affordable Care Act (ACA), also known as “Obamacare”, and eliminate protections for millions of Americans living with pre-existing conditions like myotonic dystrophy.