A large natural history study of children with DM1 may form the background for subsequent development of evidence-based case management guidance.
A new review article synthesizes published data on health-related quality of life in adult-onset DM1.
DM patient and family member/caretaker assessments of the burden of disease form the basis of a recent publication.
A new longitudinal study focuses on CNS function in congenital and childhood DM1.
What do MDF Fellow Dr. Anwesha Banerjee and DM dad Paul Dillon have in common? Besides inspiring others, they both chose to raise awareness and critically-needed funds for Care and a Cure for myotonic dystrophy though Facebook Fundraisers.
A Workshop on critical CNS clinical trial outcome measures to be held in conjunction with the MDF Annual Conference, on September 12, 2018.
Following a rigorous application process and review, MDF announces recipients of the 2019 MDF Fellowship Awards.
The Department of Defense’s 2019 Peer Reviewed Medical Research Program will again accept grant applications for research on myotonic dystrophy.
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