The DM COMPASS Study is designed to gather input that may inform future advocacy efforts related to the development of new therapies and treatments for myotonic dystrophy, especially in light of promising advancements in DM research.

Meet one of our 2026 Fellows, Ashwini Prasad, PhD! She is a student of Genetics and Genomics at Baylor College of Medicine in Dr. Tom Cooper’s lab in Houston, TX.

Meet one of our 2026 Fellows, Marwa Zafarullah, PhD! She is a postdoctoral fellow at Leland Stanford Junior University in Palo Alto, CA.

February 28, 2026, Worldwide – In recognition of Rare Disease Day 2026, the Global Alliance for Myotonic Dystrophy Awareness proudly stands together as over 60 organizations worldwide raising awareness of myotonic dystrophy (DM) and advocating for improved care, research, and access for individuals and families affected by this complex rare disease.