As we welcome 2025, MDF is filled with hope and excitement for the year ahead! From launching new support programs and resources to hosting the International MDF Conference this May, we're making strides to advance care, connection, and hope for the DM community. Read a special message from our CEO, Dr. Tanya Stevenson!

Join MDF for a Advocacy webinar on February 11th at 4pm Pacific to learn how you can help increase research funding for myotonic dystrophy and become a US State Advocacy Captain.

We are thrilled to share that the MDF's Board of Directors recently approved an additional $805,000 in funding towards 2025 myotonic dystrophy research grants and fellowships, bringing MDF's total approved research funding in 2024 to over $1 million!

Dr. Pinto has dedicated the past nine years to addressing an often-overlooked symptom of DM1—excessive daytime sleepiness (hypersomnia). Currently working in Dr. Eric Wang’s lab at the University of Florida’s Department of Molecular Genetics and Microbiology and the Center for Neurogenetics, Dr. Pinto is committed to advancing our understanding of the molecular mechanisms behind hypersomnia in DM1 and leading efforts to develop future treatments.