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News and Stories


March 7, 2019

Dr. Melissa Dixon at the University of Utah Department of Pediatrics is conducting a study to learn more about how congenital myotonic dystrophy (CDM) and childhood-onset myotonic dystrophy affect thinking, memory, attention, brain function, and how these processes change over time.

March 7, 2019

It was more than five years ago when Jeremy Kleiber went to check on a friend who wasn’t answering his found. He discovered his friend’s body with the man’s three-year-old daughter on his chest, crying for him to wake up.

February 12, 2019

A large natural history study of children with DM1 may form the background for subsequent development of evidence-based case management guidance.

February 12, 2019

A new review article synthesizes published data on health-related quality of life in adult-onset DM1.

February 12, 2019

DM patient and family member/caretaker assessments of the burden of disease form the basis of a recent publication.

February 12, 2019

A new longitudinal study focuses on CNS function in congenital and childhood DM1.

February 7, 2019

What do MDF Fellow Dr. Anwesha Banerjee and DM dad Paul Dillon have in common? Besides inspiring others, they both chose to raise awareness and critically-needed funds for Care and a Cure for myotonic dystrophy though Facebook Fundraisers.

January 22, 2019

A Workshop on critical CNS clinical trial outcome measures to be held in conjunction with the MDF Annual Conference, on September 12, 2018.


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