News  Donate!

Savitsky Family
New Animation: Inheritance of DM2
Support Patrick Cornell's 125k+ Mile Ride for DM Awareness
New Video Series: Understanding DM
DM & Mental Health Handbook Available Now
Clinical Care Recommendations
Sign Up for Emails!
Help Find a Cure for DM
New Diagnosis? Click Here!

The Latest

Federal funding cuts and disruptions in 2025 impacted progress in myotonic dystrophy research. Now, MDF is urging Congress to support $10 million in new, dedicated DM research funding within the CDMRP as part of the Fiscal Year 2027 Department of Defense spending bill.

Meet one of our 2026 Early Career Grant Recipients, Curtis Nutter, PhD! Dr. Cutter is an Assistant Professor in Biochemistry at the University of Missouri School of Medicine, leading an independent research program on RNA biology, neurological disorders, and DM1. His lab, part of the NextGen Precision Health Initiative, promotes interdisciplinary collaboration and engages the DM1 community.

Meet one of our 2026 Early Career Grant Recipients, Katarzyna Taylor, PhD! Dr. Taylor’s research over the past decade focuses on the pathomechanisms of DM1, therapeutic development, and MBNL-regulated physiological processes.

Meet one of our 2026 Early Career Grant Recipients, Samuel Carrell, MD, PhD! Assistant Professor of Neurology, Virginia Commonwealth University, United States Dr. Carrell is a physician-scientist focused on myotonic dystrophy (DM).