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February 12, 2019

A large natural history study of children with DM1 may form the background for subsequent development of evidence-based case management guidance.

February 12, 2019

A new review article synthesizes published data on health-related quality of life in adult-onset DM1.

February 12, 2019

DM patient and family member/caretaker assessments of the burden of disease form the basis of a recent publication.

February 12, 2019

A new longitudinal study focuses on CNS function in congenital and childhood DM1.

February 7, 2019

What do MDF Fellow Dr. Anwesha Banerjee and DM dad Paul Dillon have in common? Besides inspiring others, they both chose to raise awareness and critically-needed funds for Care and a Cure for myotonic dystrophy though Facebook Fundraisers.

January 22, 2019

A Workshop on critical CNS clinical trial outcome measures to be held in conjunction with the MDF Annual Conference, on September 12, 2018.

January 22, 2019

Following a rigorous application process and review, MDF announces recipients of the 2019 MDF Fellowship Awards.

January 22, 2019

The Department of Defense’s 2019 Peer Reviewed Medical Research Program will again accept grant applications for research on myotonic dystrophy.

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