2015 MDF Annual Conference Web Resources

Expand the accordions below to see related resources for various sessions from the 2015 MDF Annual Conference.

Acupuncture for Pain & GI

The following organizations help promote, certify and regulate Acupuncture and Asian Medicine in the United States. A prospective patient can visit the websites to further research acupuncture as well as find a practitioner in their area.

National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM)

The National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM®) is a non-profit 501(c)(6) organization established in 1982. The NCCAOM is the only national organization that validates entry-level competency in the practice of acupuncture and Oriental medicine (AOM) through professional certification.

American Organization for Bodywork Therapies of Asia (AOBTA)

ABT promotes, maintains, and restores physical, emotional,
mental, energetic, and spiritual health by treating the bioenergetic system with Oriental Medicine based assessments, treatment strategies, and bodywork techniques.

American Association of Acupuncture & Oriental Medicine (AAAOM)

The AAAOM is a national membership organization of acupuncture and Oriental medicine (AOM) practitioners and supporters that serves to advance the profession and practice of AOM. The mission of the AAAOM is to support our members and the AOM community through education, occupational resources, media support, and legislative advocacy in our commitment to facilitate access to the highest quality of healthcare in the United States.

ADL & Technology: Using Apps for Independence

www.bridgingapps.org - a program and website of Easter Seals Greater Houston that provides resources, education, and information on apps and mobile devices to help people with disabilities target and improve skills and reach their highest levels of physical and cognitive development.

https://www.etsy.com/shop/shapedad - creator and maker of accessories like adaptive styluses and equipment for mobile devices to assist individuals with special needs.

http://www.laseredpics.biz – an Assistive Technology website full of tablet/smartphone accessories and keyguards for mobile devices. Many keyguards assist with individuals being able to utilize communication apps more easily.

www.bookshare.org – An online library of accessible electronic books. Membership is free for individuals with qualifying disabilities.

www.audible.com - A paid service for downloading and enjoying audiobooks.

www.parentingspecialneeds.org – online digital magazine that help parents navigate the uncharted waters of raising a child with special needs. Providing practical tips, sharing life’s lessons, tackling the challenges and celebrating the joys of one of life’s greatest gifts. Covering all ages and stages of guiding children/Individuals with special needs. Empowering parents, caregivers, teachers & friends of special needs children by providing resources, information and inspiration.

Art Therapy for Juvenile-Onset Adults

To find out more information about art therapy, or to find a referral to an art therapist near you, check out www.arttherapy.org locate your local art therapy chapter and request an art therapy referral.

Caregivers Only: Maintaining Intimacy

Join the Myotonic Caregivers Facebook Group: https://www.facebook.com/groups/271639446333878/

Participate in monthly Myotonic Caregivers Virtual Support Group meetings

Meditation for Physical & Emotional Health


  • Radical Acceptance: Embracing your Life with the Heart of the Buddha by Tara Brach
  • Peace is Every Step: The Path of Mindfulness in Everyday Life by Thick Nhat Hanh
  • Mindfulness in Plain English by Bhante H. Gunaratana

Audio Resources

Unaffected Male Caregivers: Caring for Spouses & Children

Washington State Father’s Network:

Tips for Male Caregivers: http://www.caregiver.com/articles/general/7_tips_for_male.htm

The Male Perspective: Caregiver Burnout: http://www.caregiver.com/articles/caregiver/male_perspective.htm

Data on Male Caregivers: http://www.caregiver.com/articles/general/data_male_caregivers.htm

A Man’s Guide to Balanced and Guilt-Free Caregiving: https://web.archive.org/web/20180830000549/http://www.maleguideforcaregiving.com/caregivers.php

AARP Caregiver Resources: http://www.aarp.org/home-family/caregiving/

UCSF Palliative Care lecture videos: https://www.osher.ucsf.edu/research/current-research/current-research-studies/current-research-overarching-themes/#palliative

Join the Myotonic Unaffected Male Caregivers Facebook Group: https://www.facebook.com/groups/145066095838355/

Participate in monthly Myotonic Caregivers Virtual Support Group meetings: http://myotonic.org/caregiver-virtual-support-group-meeting-0

© Myotonic Dystrophy Foundation. All rights reserved.