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2020 Myotonic Annual Conference

Agenda items for the 2020 Myotonic Annual Conference.

Welcome Reception and Poster Session

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Agenda Date Time
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Agenda Detail
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Welcome Reception
Join community members and DM professionals at the opening reception. Hors d'oeuvres will be served and a cash bar will be available. Be sure to visit the research poster session that will occur during the reception.

Agenda Detail Time
5:30pm
To Time
7:30pm
Agenda Detail Item

Research Poster Session (During Welcome Reception)
Myotonic research Fellows, industry professionals and academic researchers present their current research and answer questions via 1:1 discussions at their posters. Grab a beverage and circulate!

Agenda Detail Time
5:30pm
To Time
7:30pm

Break

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Agenda Date Time
-
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Break
Take a break and get ready for the Welcome Reception & Poster Session!

Agenda Detail Time
5:00pm
To Time
5:30pm

Common Complications; Adaptive Tips & Tricks; The Arc; Caring for the Caregiver

Agenda Category
Agenda Date Time
-
Agenda Chairs
Andrew Skalsky, MD
Beth Martin, MS, CCC-SLP, ATP
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Common Complications of Myotonic Dystrophy with Dr. Andrew Skalsky, MD

Agenda Detail Time
4:00pm
To Time
5:00pm
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Adaptive Tips & Tricks with Beth Martin, MS, CCC-SLP, ATP

Agenda Detail Time
4:00pm
To Time
5:00pm
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The Arc

Agenda Detail Time
4:00pm
To Time
5:00pm
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Caring for the Caregiver

Agenda Detail Time
4:00pm
To Time
5:00pm

Conference Welcome

Agenda Category
Agenda Date Time
-
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Conference Welcome
The opening session will include updates on our Care and Cure programming and some exciting Foundation announcements, including the presentation of the Kayla Vittek Memorial Award for Outstanding Community Advocate.

Agenda Detail Time
1:15pm
To Time
2:00pm

Break

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Agenda Date Time
-
Agenda Detail
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Break for Lunch
Enjoy a break for lunch.

Agenda Detail Time
12:00pm
To Time
1:15pm

Genetics; Pain Managment; Congenital Caregivers Roundtable; DM2 Meet & Greet

Agenda Category
Agenda Date Time
-
Agenda Chairs
Sophia Ceulemans, MS, LCGC
Jacinda Sampson, MD, PhD
Agenda Detail
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Genetics with Sophia Ceulemans, MS, LCGC

Agenda Detail Time
3:00pm
To Time
4:00pm
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Pain Management with Dr. Jacinda Sampson, MD, PhD

Agenda Detail Time
3:00pm
To Time
4:00pm
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Congenital Caregivers Roundtable
Facilitated support group discussion for caregivers of congenital and childhood-onset myotonic dystrophy patients.

Agenda Detail Time
3:00pm
To Time
4:00pm
Agenda Detail Item

DM2 Meet & Greet

Agenda Detail Time
3:00pm
To Time
4:00pm

DM101; Special Needs Legal Issues; Male Caregivers Roundtable; Female Caregivers Roundtable; Vendor Showcase; JOA

Agenda Category
Agenda Date Time
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Agenda Chairs
Payam Soltanzadeh, MD
Battaglia Law Firm
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Myotonic Dystrophy 101 with Dr. Payam Soltanzadeh, MD
A session for first-time attendees and those interested in a refresher on DM genetics, symptom burden and disease management strategies.

Agenda Detail Time
2:00pm
To Time
3:00pm
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Special Needs Legal Issues with a panel from the Battaglia Law Firm

Agenda Detail Time
2:00pm
To Time
3:00pm
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Male Caregivers Roundtable
Facilitated support group discussion for male caregivers of myotonic dystrophy patients.

Agenda Detail Time
2:00pm
To Time
3:00pm
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Female Caregivers Roundtable
Facilitated support group discussion for female caregivers of myotonic dystrophy patients.

Agenda Detail Time
2:00pm
To Time
3:00pm
Agenda Detail Item

Research & Vendor Showcase
Visit the Research & Vendor Showcase to talk to researchers about current studies, meet the famous Service Dogs, academic researchers, local organizations and more.

Agenda Detail Time
2:00pm
To Time
5:00pm
Agenda Detail Item

Juvenile-onset Adults (JOA) Program

Agenda Detail Time
2:00pm
To Time
5:00pm

Networking & Listening Lounge; Vendor Showcase; JOA

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Agenda Date Time
-
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Networking & Listening Lounge
Enjoy coffee and a sitting area with fellow community members.

Agenda Detail Time
9:00am
To Time
12:00pm
Agenda Detail Item

Research & Vendor Showcase
Visit the Research & Vendor Showcase to talk to researchers about current studies, meet the famous Service Dogs, academic researchers, local organizations and more.

Agenda Detail Time
9:00am
To Time
12:00pm
Agenda Detail Item

Juvenile-onset Adults (JOA) Program

Agenda Detail Time
9:00am
To Time
12:00pm