Welcome Reception
Join community members and DM professionals at the opening reception. Hors d'oeuvres will be served and a cash bar will be available. Be sure to visit the research poster session that will occur during the reception.
Agenda Detail Time
5:30pm
To Time
7:30pm
Agenda Detail Item
Research Poster Session (During Welcome Reception)
Myotonic research Fellows, industry professionals and academic researchers present their current research and answer questions via 1:1 discussions at their posters. Grab a beverage and circulate!
Conference Welcome
The opening session will include updates on our Care and Cure programming and some exciting Foundation announcements, including the presentation of the Kayla Vittek Memorial Award for Outstanding Community Advocate.
Myotonic Dystrophy 101 with Dr. Payam Soltanzadeh, MD
A session for first-time attendees and those interested in a refresher on DM genetics, symptom burden and disease management strategies.
Agenda Detail Time
2:00pm
To Time
3:00pm
Agenda Detail Item
Special Needs Legal Issues with a panel from the Battaglia Law Firm
Agenda Detail Time
2:00pm
To Time
3:00pm
Agenda Detail Item
Male Caregivers Roundtable
Facilitated support group discussion for male caregivers of myotonic dystrophy patients.
Agenda Detail Time
2:00pm
To Time
3:00pm
Agenda Detail Item
Female Caregivers Roundtable
Facilitated support group discussion for female caregivers of myotonic dystrophy patients.
Agenda Detail Time
2:00pm
To Time
3:00pm
Agenda Detail Item
Research & Vendor Showcase
Visit the Research & Vendor Showcase to talk to researchers about current studies, meet the famous Service Dogs, academic researchers, local organizations and more.
Networking & Listening Lounge
Enjoy coffee and a sitting area with fellow community members.
Agenda Detail Time
9:00am
To Time
12:00pm
Agenda Detail Item
Research & Vendor Showcase
Visit the Research & Vendor Showcase to talk to researchers about current studies, meet the famous Service Dogs, academic researchers, local organizations and more.