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General Session

Description of a general session.

Q&A

Agenda Category
Agenda Date Time
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Agenda Chairs
Panelists TBD
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Questions submitted throughout the conference will be answered by a panel of DM Professionals.

Agenda Detail Time
5:00pm
To Time
5:15pm

Heart Health: Understanding DM Cardiac Symptoms

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Agenda Date Time
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Agenda Chairs
Saman Nazarian, MD, PhD
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Heart Health: Understanding DM Cardiac Symptoms with Saman Nazarian, MD, PhD
This session will explains how DM may impact your heart, and gives an overview of the cardiac electrical system, common symptoms associated with conduction problems, and preventative measures.

Agenda Detail Time
1:00pm
To Time
2:00pm

Industry Updates (Additional Companies TBD)

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Agenda Date Time
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Agenda Chairs
Industry Presenters TBD
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Industry Updates (Additional Companies TBD)
Representatives from biotech and pharma companies will provide updates on their drug development efforts in the DM field, including companies new to the MDF Annual Conference:
Art Levin, PhD, Avidity Biosciences
Romesh Subramanian, Dyne Therapeutics
Matt Disney, PhD., Expansion Therapeutics
Laury Mignon, PhD, Ionis Therapeutics
Gene Yeo, PhD, Locana Bio

Agenda Detail Time
4:00pm
To Time
4:50pm

Patients Report Out: Living with DM Over 50

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Agenda Date Time
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Agenda Chairs
Moderator: Laurie Gutmann, MD, University of Iowa
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Patients Report Out: Living with DM over 50 moderated by Laurie Gutmann, MD, University of Iowa
This interactive panel session will be similar in format to the Living with DM: Patient Report on Changes Over Time that was presented at the 2018 MDF Annual Conference. Panelists will discuss the disease symptom changes they have experienced living with myotonic dystrophy, followed by facilitated audience participation. This session will help researchers and drug developers understand disease changes and progression from the perspective of over-50 individuals living with DM and their families.

Agenda Detail Time
2:00pm
To Time
3:20pm

Conference Welcome

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Agenda Date Time
-
Agenda Detail
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Conference Welcome
The opening session will include updates on our Care and Cure programming and some exciting Foundation announcements, including the presentation of the Kayla Vittek Memorial Award for Outstanding Community Advocate.

Agenda Detail Time
1:15pm
To Time
1:45pm