Alexandra LeBoeuf is a juvenile-onset DM1 warrior who co-facilitates the Canadian support group with her mother Julie. By sharing her story, Alexandra hopes to inspire other individuals and families living with DM to live their best life. Alexandra currently lives in Northern Ontario, Canada with her family while she completes her Bachelor of Arts in Liberal Studies at Nipissing University. With her studies, Alex aspires to become an even better advocate for the DM community.

Alexandra is also an artist who uses her craft to express herself and as a tool to teach others. Her work recently came into the spotlight when she won the logo design contest for the International Myotonic Dystrophy Awareness Day! Learn more about Alex from her presentation at the 2021 Virtual MDF Annual Conference.