Myotonic has recently published Consensus-based Care Recommendations for Adults with DM1 in Neurology Clinical Practice online September 13.
Now we need to make sure that every clinician treating a DM patient has them and is using them – and we need your help! Myotonic is asking our community members to help educate their doctors about the care recommendations, and we'll show you how. Watch DM doctors and community members act out entertaining skits that will explain what to say to your doctors during your doctors visits. These skits will include a twist: affected community members will be the doctors and doctors are patients in these hilarious educational vignettes.
Facilitator: Jacinda Sampson, MD, PhD, Stanford University
Find a write up on the DM1 Care Recommendations here.
Click here to download the Clinic Visit Planner.
Background PowerPoint Presentation
Click here for more presentations and videos from the 2018 Myotonic Annual Conference in Nashville, TN.