Individuals with myotonic dystrophy (DM) know the most: Listening to what is most relevant to the DM community and integration of this knowledge into research and clinical trial design.
Moderated by: Nicholas E. Johnson MD, MSci, FAAN, Virginia Commonwealth University, MDF Medical and Scientific Advisory Committee
Speakers:
- Jeannine DeSoi BSN, RN, MDF Volunteer Support Group Facilitator, DM1 Community Member
- Belen Esparis MD, MDF Board of Directors, MDF National Advocacy Committee, Unaffected Caregiver
Thank you to our 2025 MDF Conference Sponsors for helping make this event possible:
- Lead Sponsor: Avidity Biosciences
- Diamond Sponsors: Dyne Therapeutics and Arthex Biotech
- Platinum Sponsors: PepGen and Vertex Pharmaceuticals
- Gold Sponsor: Sanofi
- Bronze Sponsor: Lupin Neurosciences