DM Day - University of Kansas Medical Center

Saturday, August 5th
10:00 AM - 3:00 PM Central Time

University of Kansas Medical Center
Merriam Community Center, Kansas City, KS
Lunch will be provided.

Click Here to Register!

Join MDF for a Myotonic Dystrophy Day!

MDF is hosting our first DM Day since the COVID-19 pandemic, in partnership with Kansas City Medical Center! Join us, Saturday, August 5th from 10 AM to 3 PM CST to learn from world renowned experts, researchers, and those dedicated to improving the lives of people affected by myotonic dystrophy and their caregivers. Lunch will be provided, and there will be ample opportunities to connect with the local DM community, as well as local DM experts.

About MDF DM Days

MDF Myotonic Dystrophy Days (MDF DM Days) are local events aimed and providing education, support, and connection for those affected by DM. Click here to learn more about our prior DM Day events.

Agenda - August 5th, 2023

Time Session
9:00 - 10:00 AM Arrival & Check-in
10:00 - 10:15 AM Welcome & Introduction
Jeffrey Statland, MD
10:15 - 10:40 AM Genetics Overview
Constantine Farmakidis, MD
10:40 - 11:05 AM Impact of DM on the Heart
11:05 - 11:30 AM Managing Sleep Issues
11:30 - 11:40 AM Break
11:40 AM – 12:05 PM Understanding the importance of Patient Reported Registries
Johanna Hamel, MD
12:05 - 12:30 PM Congenital Myotonic Dystrophy
Nick Johnson, MD
12:30 - 1:00 PM Lunch
1:00 - 1:10 PM Introduction to the Myotonic Dystrophy Foundation Resources
1:10 - 1:15 PM Story of Inspiration
Patricia Gibson, MDF Support Group Facilitator
1:15 - 1:30 PM Introduction to Breathing Exercises
Lorna Jarret, D.H.Sc
1:35 - 2:00 PM Physical Therapy, Occupational Therapy and Speech Panel
2:00 - 2:55 PM Research Updates and Q&A
Avidity Bioscience, PepGen, and more!
2:55 - 3:00 PM Closing Remarks
Jeffrey Statland, MD
3:00 PM Ice-Cream Social

Click Here to Register!

Add to Calendar 2023-08-05 00:00:00 2023-08-05 00:00:00 DM Day - University of Kansas Medical Center To know more about this Event, Just go to: Location Myotonic Dystrophy Foundation America/Vancouver public