Your participation is voluntary and your individual information will be kept completely confidential.  You can opt out of the Registry at any time and all of the data you provide will be entirely de-identified (anonymous).  This means that if you're potentially eligible for a clinical trial or research study based on your Registry data, researchers will contact us first.  We will follow up with you and, if you would like to learn more, will connect you with the interested research organization.  You will never be contacted by anyone but Registry staff.