MDF Advocacy Week

Myotonic Dystrophy Foundation Advocacy Week

April 17th - 20th, 2023

MDF invites advocates from across America to email, call, and meet with their U.S. Senators and Representatives during our 2023 Advocacy Week campaign April 17-21st to raise DM awareness and urge Congress to increase federal funding for myotonic dystrophy (DM) research to help us find a cure!

Click here to learn more about MDF's advocacy efforts!

Updated information on how to get involved and sample letters to Congress coming soon!


Get Up to Speed with our Rare Disease Month Advocacy Workshop

As the new Congress begins work on the fiscal year 2024 budget that includes important federal biomedical research funding, MDF advocates from across the country will be urging our U.S. Senators to include DM as an eligible research condition under the Peer Review Medical Research Program (PRMRP) for the 7th year in a row. Our advocacy has helped DM researchers secure $16 million in new myotonic dystrophy research funding since our inclusion in the program which has helped advance our understanding of this rare genetic disorder. Together, we are changing the world and improve the lives of everyone living with DM.

Click here to watch our 2023 Rare Disease Day webinar and join the movement!


Monday, April 17, 2023 to Friday, April 21, 2023

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