Myotonic Toolkit, produced by Myotonic ©2015. Myotonic has created an easy-to-use Toolkit with the guidance of the Myotonic Scientific Advisory Committee. The Toolkit includes valuable information for affected individuals and their families, detailed information and resources for medical professionals, Myotonic Dystrophy: The Facts, by Prof. Peter Harper, a wallet-sized medical alert card, a medical history sheet and much more. Click here to order a hard copy of the Myotonic Toolkit, or download it in the following languages:
Anesthesia Guidelines. Regardless of the form of DM or the severity of DM symptoms experienced, individuals can have severe and life-threatening reactions to anesthesia and should be monitored carefully whenever anesthesia is administered.
Physical Therapy Guidelines. by Drs. Katy Eichinger and Shree Pandya, University of Rochester.
Occupational Therapy Guidelines. Dr. Cynthia Gagnon, University of Sherbrooke, Ottawa, Canada
The Facts: Myotonic Dystrophy, by Prof. Peter Harper, published by Oxford University Press, 2002. A hundred-page book written for families living with myotonic dystrophy, written in easy-to-understand language. A good place to begin educating yourself. Available online at Oxford University Press or Amazon.com. Also included in the Myotonic Toolkit, hardbound edition.
- Les Faits (version française / French version)
- I Fatti (versione italiana / Italian version)
- Os Factos (versão em português / Portuguese version)
- Los Hechos (versión española / Spanish version)
Financial Resources for People Living with DM offers a compilation of financial resources available on a federal/national level for people living with myotonic dystrophy in the United States. The information was compiled by Dr. Leslie Krongold, a DM support group leader and a DM community member.
Myotonic Cooks. A recipe book for those with dysphagia, other swallowing disorders, or difficulty chewing. These recipes were all submitted by Myotonic community members and tested by a nutritionist.