Outside Publications

Myotonic Dystrophy – Present Management, Future Therapy, edited by Prof. Peter Harper, published by Oxford University Press, 2004. A 240-page book written by DM experts from around the world, geared to medical professionals. Highly technical descriptions; great book to own in order to take to medical appointments as specific symptoms arise. 

Myotonic Dystrophy, 3rd Edition, by Prof. Peter Harper, published by W.B. Saunders, 2001. A 400-page book on DM written for medical professionals. Highly technical descriptions.

Disabled and Challenged: Reach for Your Dreams, by Terry Scott Cohen and Barry M. Cohen, published by WishingUwell Publishing, 2005. A 130-page book written by a young adult with myotonic dystrophy along with his father, a psychologist.

Genetic Instabilities and Neurological Diseases, 2nd ed., by Robert D. Wells and Tetsuo Ashizawa, published by Elsevier Academic Press, 2006. Highly technical descriptions.

Helping Friends: Helpful Hints for Persons Living with Myotonic Muscular Dystrophy, published by The Myotonic Dystrophy Assistance and Awareness Support Group (MDAASG). A helpful guide by a Los Angeles-based group for families dealing with DM. Note: In this document, myotonic dystrophy is abbreviated as MMD rather than DM.