For Providers

These publications are for professional audiences – especially doctors and nurses – who treat and care for individuals living with DM. MDF urges families to share these resources with their providers.

Practical Suggestions for the Anesthetic Management of a Myotonic Dystrophy Patient

Respiratory Care Recommendations for Myotonic Dystrophy Patients During the COVID-19 Pandemic

Clinical Care Recommendations for Adults with Myotonic Dystrophy Type 1

Clinical Care Recommendations for Children with Myotonic Dystrophy Type 1

Clinical Care Recommendations for Adults with Myotonic Dystrophy Type 2

Clinical Care Recommendations for Cardiologists Treating Adults with Myotonic Dystrophy Type 1

Clinical Care Recommendations for Pulmonologists Treating Adults with Myotonic Dystrophy Type 1

Occupational Therapy Suggestions for the Management of a Myotonic Dystrophy Patient

  • Occupational Therapy Guidelines: A quick reference excerpt for clinicians from the full MDF Toolkit (see link above). Occupational therapy is a health profession focused on enabling people to participate in activities of daily living that give meaning and purpose to their lives.

The Role of Physical Therapy in the Assessment and Management of Individuals with Myotonic Dystrophy

  • Physical Therapy Guidelines: Most individuals living with myotonic dystrophy (DM) will probably first encounter a physical therapist in the multidisciplinary clinic where they receive care. These Physical Therapy Guidelines for DM address the role that the physical therapist plays in DM care, including evaluation, education, instructions and physical movement recommendations.

Care Guidelines for Speech and Language Pathologists Treating Adults and Children with Myotonic Dystrophy

  • Speech and Language Pathologists Guidelines: This guide is written and reviewed by an international group of speech and language pathologists who are specialized in working with adults and children with DM. The guidelines include information on assessment, diagnosis, and therapy for speech, swallowing and language needs related to DM.

Clinical Recommendations for People of Pregnancy Potential with Myotonic Dystrophy