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Myotonic Dystrophy Anesthesia Guidelines

Share the DM Anesthesia Guidelines with your Doctor! Individuals living with myotonic dystrophy can have severe reactions to anesthesia and should be monitored carefully whenever anesthesia is administered. Download the one page Anesthesia Quick Reference Guide!

Download DM-Specific Resources

Explore MDF's resources for people living with DM and others involved in their care, safety, and happiness. View all our DM Toolkits & Publications!

Myotonic Dystrophy News

August 22,2025

Empowering the Future: RNA Day Celebrates Innovation, Education, and Hope for the DM Community

The RNA Institute at the University at Albany’s College of Arts and Sciences hosted its annual “RNA Day” celebration on Friday, August 2nd. This day brought exciting news and celebrations for myotonic dystrophy (DM) research!

August 22,2025

Celebrate Myotonic Dystrophy In Motion Awareness Month 2025 – Movement Matters this July

This July, MDF is thrilled to host the 2025 Myotonic Dystrophy In Motion Awareness Month—a month-long celebration centered around the theme: Movement Matters.

July 23,2025

Could Myotonic Dystrophy Be Included in Newborn Screening? Experts Say It’s Time to Explore

On February 14, 2025, the RNA Institute and the Myotonic Dystrophy Foundation (MDF) organized and co-hosted the first ever symposium exploring how to include myotonic dystrophy (DM) in newborn screening. Conditions included in newborn screening are also diseases that do not have treatments but benefit from early disease management thereby significantly improving clinical outcomes.

July 23,2025

Fixing DNA Typos: New Hope for Myotonic Dystrophy

A recent publication in Nature Genetics explores base editing as a solution to repeat expansion diseases similar to myotonic dystrophy (DM). This summary was created by Asmer Aliyeva, PhD Candidate in Dr. Andy Berglund’s lab at the RNA Institute, in collaboration with MDF's Chief Scientific Officer, Dr. Andy Rohrwasser.

June 27,2025

125,000+ Miles for Awareness: One Man’s Ride to Shine a Light on Myotonic Dystrophy

This summer, a cross-country journey is capturing hearts and uniting motorcycle enthusiasts, rare disease advocates, and families impacted by DM. Patrick "Pat" Cornell—a 60-year-old Navy veteran, 9/11 first responder, and retired firefighter—is riding 125,000+ miles in 125+ days to raise awareness and funds for MDF!

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.

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