Start a Support Group in Your Area

Over 24 Active Support Groups

Myotonic currently sponsors 24 active support groups around the US and internationally, in addition to our online and phone based groups. We are incredibly grateful for the commitment of our support group facilitators and the vital role that they play for the DM community. Support groups provide a space for people to connect, share stories and challenges, and support one and other. These groups create lasting relationships and can help people feel less isolated and alone.

Click here to find an in-person support group near you!

Start a Myotonic Support Group in Your Area

We are on a mission to make support groups available to every affected family member who wants one. If you are interested in starting a support group in your area, we are here to work with you through every step of the process, and we'll provide ongoing support and resources to ensure that your group is a success. Contact Myotonic Program Director Leah Hellerstein at 415-872-7924 or at Leah.Hellerstein@myotonic.org for more information. 

Virtual Support Options

Don't live near a support group but still interested in networking, sharing information and making friends in the DM community? Not quite ready to start your own? Check out Myotonic's Facebook Groups:

Other Myotonic Facebook Groups:

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