Over 24 Active Support Groups
Myotonic currently sponsors 24 active support groups around the US and internationally, in addition to our online and phone based groups. We are incredibly grateful for the commitment of our support group facilitators and the vital role that they play for the DM community. Support groups provide a space for people to connect, share stories and challenges, and support one and other. These groups create lasting relationships and can help people feel less isolated and alone.
Click here to find an in-person support group near you!
Start a Myotonic Support Group in Your Area
We are on a mission to make support groups available to every affected family member who wants one. If you are interested in starting a support group in your area, we are here to work with you through every step of the process, and we'll provide ongoing support and resources to ensure that your group is a success. Contact Myotonic Program Director Leah Hellerstein at 415-872-7924 or at Leah.Hellerstein@myotonic.org for more information.
Virtual Support Options
Don't live near a support group but still interested in networking, sharing information and making friends in the DM community? Not quite ready to start your own? Check out Myotonic's Facebook Groups:
- Myotonic Caregivers Group
- Myotonic DM1 Group
- Myotonic Myotonic Dystrophy Type 2
- Myotonic Unaffected Male Caregiver Group
- Myotonic Myotonic Dystrophy JOA
Other Myotonic Facebook Groups:
- Chicagoland DM Support Group
- Indiana Myotonic Muscular Dystrophy Support Group
- Myotonic support group Greensboro, NC
- Myotonic Support Group - Kansas City, MO
- Our Voices - Our Life
- Myotonic Dystrophy Support and Information
- Distrofia Muscular Miotonica ou Distrofia de Steinert
- Telefon-Kontaktgruppe myotone Dystrophie