Disease Management

The DM Check Up - Best Practices

Dr. Jacinda Sampson describes strategies for ensuring a successful visit to your medical professional.

Creating a Medical Team for DM Care

Dr. Jacinda Sampson describes the importance of, and strategies for, creating a medical team for myotonic dystrophy care.

Pain and DM2

A father and son living with myotonic dystrophy type 2 describe the unique pain they experience with this disease.

Ask-the-Expert: Respiratory Issues & DM

Do you have questions for DM doctors and therapists? Join Valeria Sansone, MD, PhD of the NEuroMuscular Omnicentre (NEMO) for a “Ask-the-Expert” session on myotonic dystrophy and the respiratory system.

Ask-the-Expert: Exercise & Movement

Do you have questions for DM doctors and therapists? Join Tina Duong, PT, PhD of Stanford University and Katy Eichinger, PT, PhD, DPT, NCS of the University of Rochester for a “Ask-the-Expert” session on exercise. After the success of the Stump-the-Doctor session at the 2020 Virtual MDF Conference, MDF has created a series using the same format to connect families and DM experts.

DM Strength Training with Rachel Kahn (Part 4 of 4)

One of our most popular conference sessions, Strength Training, is becoming a 4-part series! Join Certified Strength and Conditioning Specialist, Rachel Kahn for a series of strength training classes designed for the myotonic dystrophy community.

DM Strength Training with Rachel Kahn (Part 3 of 4)

One of our most popular conference sessions, Strength Training, is becoming a 4-part series! Join Certified Strength and Conditioning Specialist, Rachel Kahn for part 4 of a series of strength training classes designed for the myotonic dystrophy community.

DM Strength Training with Rachel Kahn (Part 2 of 4)

One of our most popular conference sessions, Strength Training, is becoming a 4-part series! Join Certified Strength and Conditioning Specialist, Rachel Kahn for a series of strength training classes designed for the myotonic dystrophy community.

DM Strength Training with Rachel Kahn (Part 1 of 4)

One of our most popular conference sessions, Strength Training, is becoming a 4-part series! Join Certified Strength and Conditioning Specialist, Rachel Kahn for a series of strength training classes designed for the myotonic dystrophy community.

Food Preparation for the DM Community

Presented during Myotonic's Friday Afternoon Webinar Series.

This webinar will cover a basic understanding of adult nutrition, dysphagia (swallowing difficulties), and food preparation. Dr. Krongold (adult-onset DM1) and her partner, Jessica, will demonstrate the tools needed to prepare three simple, nutritious meals for people with chewing and/or swallowing difficulties.

Click here for more information on the Cooking Video Contest!

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