Disease Management

The DM Check Up - Best Practices

Dr. Jacinda Sampson describes strategies for ensuring a successful visit to your medical professional.

Creating a Medical Team for DM Care

Dr. Jacinda Sampson describes the importance of, and strategies for, creating a medical team for myotonic dystrophy care.

Pain and DM2

A father and son living with myotonic dystrophy type 2 describe the unique pain they experience with this disease.

Food Preparation for the DM Community

Presented during Myotonic's Friday Afternoon Webinar Series.

This webinar will cover a basic understanding of adult nutrition, dysphagia (swallowing difficulties), and food preparation. Dr. Krongold (adult-onset DM1) and her partner, Jessica, will demonstrate the tools needed to prepare three simple, nutritious meals for people with chewing and/or swallowing difficulties.

Click here for more information on the Cooking Video Contest!

Heart Health - 2019 Myotonic Annual Conference

Heart Health: Understanding DM Cardiac Symptoms with Saman Nazarian, MD, PhD

This session explains how myotonic dystrophy may impact your heart and provides an overview of the cardiac electrical system, common symptoms associated with conduction problems, and preventative measures.

Download the Heart Health Slide Deck.

Exercise, Nutrition & Speech - 2019 Myotonic Annual Conference

Exercise, Nutrition & Speech with Katy Eichinger, PhD, DPT, Leslie Vnenchak, MA, CCC-SLP, and Robin Meyers, RD, MPH, LDN

This rehabilitation panel reviews current research and strategies for managing DM symptoms through exercise, speech and nutrition.

Download the Exercise Slide Deck.

Download the Speech Slide Deck.

Facilitating Social Interaction in Myotonic Dystrophy with Dr. Missy Dixon

A webinary presentation on "Facilitating Social Interaction In Myotonic Dystrophy" by Melissa M. Dixon, PhD, MS from the University of Utah.

Consensus-based Care Recommendations: What Do They Mean for You? (2018 MDF Annual Conference)

Myotonic is asking our community members to help educate their doctors about the care recommendations, and we'll show you how. Watch DM doctors and community members act out entertaining skits that will explain what to say to your doctors during your doctors visits. These skits will include a twist: affected community members will be the doctors and doctors are patients in these hilarious educational vignettes.

Dr. Gagnon - Strategies For Managing Progression (2018 MDF Annual Conference)

Current strategies for managing disease progression and maintaining quality of life, including the latest in tools and resources with Cynthia Gagnon, OT, PhD, Université de Sherbrooke

Dr. Dixon - Strategies For Managing Progression (2018 MDF Annual Conference)

Current strategies for managing disease progression and maintaining quality of life, including the latest in tools and resources with Missy Dixon, PhD, University of Utah.

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