Newly Diagnosed

The DM Check Up - Best Practices

Dr. Jacinda Sampson describes strategies for ensuring a successful visit to your medical professional.

Creating a Medical Team for DM Care

Dr. Jacinda Sampson describes the importance of, and strategies for, creating a medical team for myotonic dystrophy care.

Myotonic Dystrophy Resources


Learn about the different resources that have been created for the Myotonic Dystrophy community! This presentation provides an introduction to help familiarize you with the resources and support options available for families affected by myotonic dystrophy.

The resources discussed during this video can be found at:

Caring for the Caregiver


Presented during Myotonic's Friday Afternoon Webinar Series.

Identify and learn how to manage your responsibilities as a caregiver. Learn how to recognize, understand, and respond to the emotional challenges of being a caregiver. Explore stress management techniques and learn of the resources available for caregivers and care receivers. Be sure to check out the resouces discussed during the presentation.

Myotonic Dystrophy: An Overview and Update

Dr. W. David Arnold, a researcher and practicing doctor at the Ohio State University, presents an overview of myotonic dystrophy.

Heart Health - 2019 Myotonic Annual Conference

Heart Health: Understanding DM Cardiac Symptoms with Saman Nazarian, MD, PhD

This session explains how myotonic dystrophy may impact your heart and provides an overview of the cardiac electrical system, common symptoms associated with conduction problems, and preventative measures.

Download the Heart Health Slide Deck.

Exercise, Nutrition & Speech - 2019 Myotonic Annual Conference

Exercise, Nutrition & Speech with Katy Eichinger, PhD, DPT, Leslie Vnenchak, MA, CCC-SLP, and Robin Meyers, RD, MPH, LDN

This rehabilitation panel reviews current research and strategies for managing DM symptoms through exercise, speech and nutrition.

Download the Exercise Slide Deck.

Download the Speech Slide Deck.

Financial Planning & DM - 2019 Myotonic Annual Conference

Financial Planning & DM with Pat Bergmaier, CFP®, ChSNC

This session reviews financial planning including government benefits, special needs trusts and wills, social security, and more.

Have more financial planning questions? Connect with Pat on LinkedIn.

Click here to download the slide deck.

DM and Genetics Your Questions Answered

Join Certified Genetic Counselor Tiffany Grider from the University of Iowa for an recorded webinar on genetic testing.

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