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2012 MDF Annual Conference Program

The program for the 2012 MDF Annual Conference, held August 17th and 18th at the Hyatt Regency San Francisco Airport, is below.  Click on the link next to each session to view the presentations or handouts included in that session.  New presentations and handouts are being added to the website daily.  Check back if the presentation you want to view has not yet been uploaded.  Contact MDF at info@myotonic.org or 86-myotonic (866-968-6642) if you have questions regarding the conference program.


Friday, August 17, 2012

10:00 AM - 1:00 PM: MDF Resource Fair

1:00 - 1:30 PM: Conference Welcome

1:30 - 2:35 PM: General Session: DM and the Heart, Dr. Howard H. Rosenfeld, M.D., Children's Hospital and Research Center, Oakland, CA (click here to view presentation).

2:35 - 3:35 PM: General Session: DM Care and the Advocate's Role, Dr. Cynthia Gagnon, erg. Ph.D., University of Sherbrooke, Quebec, Canada (Click here to view presentation).

3:55 - 5:00 PM: General Session: Eating for GI Health, Dr. Elizabeth Gleghorn, M.D., Children's Hospital, Oakland, and Dr. Don Forrester, M.D., CPE, Kaiser Permanente (retired). (Click here to read presentation summary). 

5:30 - 6:30 PM: Welcome Reception


Saturday, August 18, 2012

8:00 AM: MDF Resource Fair Open

9:00 AM - 10:30 AM: Concurrent Breakout Sessions:

10:45 AM - 12:15 PM: Concurrent Breakout Sessions (see links above to view presentations)

  • Orthotics & Physical Therapy, Christine Egan, MPH, PT, San Rafael, CA; John Allen, CPO, Allen Orthopedic Labs, Greenbrae, CA; Dr. Shree Pandya, PT, DPT, MS, University of Rochester, Rochester, NY
  • The Brain: Cognitive Function and DM, Dr. John W. Day, M.D., Ph.D., Stanford University, Stanford, California
  • Occupational Therapy for DM: Strategies for Daily Living, Dr. Cynthia Gagnon, erg. Ph.D., University of Sherbrooke, Quebec, Canada
  • Family Planning & Genetic Counseling, Dr. Jacinda Sampson, M.D., Ph.D., Columbia University Medical Center, New York
  • Young Adults: Transitions and Independent Living, Dr. Barry Cohen, Barry M. Cohen & Associates, Clearwater, FL and Kathleen Austria, Deputy for Mental Health Services & Homeless Issues, Los Angeles County, CA

1:30 - 2:30 PM: General Session: Understanding SSI & SSDI, Daniel E. Fortuño, President & CEO, Benefits Education Center (click here to view Fortuno presentation). (Click here to view presentation handout).

2:30 - 3:30 PM: General Session: Caring for the Caregiver, Diane Bade, RN, caregiver, mother and Dr. Barry Cohen, Ph.D., Barry Cohen & Associates, Clearwater, FL (click here to view Bade presentation).

3:45 - 4:45 PM: DM Research Update: Dr. John W. Day, M.D., Ph.D., Stanford University, Stanford, California and Dr. Robert MacLeod, Vice President of Oncology & Exploratory Discovery, Isis Pharmaceuticals (click here to view Day research introduction).

4:45 - 5:30 PM: Q&A Session, Panel of Experts

6:00 - 8:00 PM: Dinner and Closing Ceremony


Sunday, August 19, 2012

9:00 AM - Noon: Open Meeting Spaces Available for Community-Driven Meetings
10:30 - 11:30 AM: Chair Yoga Demonstration Class (click here to view Yoga demonstration).





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