December 2014 Dispatch

• Webinar: Clinical Trials 101
• Sarah and Zoé Berman: A Story of Hope and Recovery
• Dr. Tetsuo Ashizawa: Tackling DM from Basic Research Through Clinical Care
• Celebrating MDF Support Groups

November 2014 Dispatch Volume 2

• MDF Launches Clinical Trials Resource Center
• 2nd Annual Myotonic Dystrophy Information Meeting
• Join MDF on #GivingTuesday!
• 2014 Grassroots Year in Review

November 2014 Dispatch Volume 1

• Nominate Your Caregiver!
• Larry Lord: Devoted Father Find Balance as DM Caregiver
• Grandparents Campaign a Success!
• Care and a Cure in 2015: How You Can Help

October 2014 Dispatch Volume 2

• Celebrate Caregivers
• Survey Positions 2014 MDF Annual Conference as the Most Successful to Date
• Endocrine Function in DM1 Patients
• Join us in Boston on November 7!

October 2014 Dispatch Volume 1

• The Pontifex Family: Strength Through Community
• Celebrate Caregivers
• Update Your Registry Information by October 31
• MDF Merchandise Now Available

September 2014 Dispatch Volume 2

• 2014 MDF Annual Conference: What a Weekend!
• MD-CARE Act Passes!
• Toxic RNA Research Update

September 2014 Dispatch Volume 1

• New and Improved MDF Website
• University of Iowa to Launch a Multidisciplinary DM Clinic
• Join the 2014 MDF Annual Conference Livestream Broadcast

August 2014 Dispatch Volume 2

• MDF Launches a New Look!
• New Research: Parental Age Effects in the Transmission of DM1
• Join the Myotonic Dystrophy Family Registry

August 2014 Dispatch Volume 1

• Laura Gershenson: Giving Back to the DM Community
• MDF is Launching a Blog!
• The DMCRN: Community Follow-Up

July 2014 Dispatch Volume 2

• The DMCRN: Expanding the Scope of Research
• Research News: DM2 Small Molecule Study
• Upcoming Webinar: Sleep Issues Associated with DM

July 2014 Dispatch Volume 1

• Christian and Kelly Lundy Help Others with DM Find Support
• Scientific and Clinical Community Provides Guidance: Dr. Darren Monckton
• Grandparents Campaign: Sign-Up By August 7

June 2014 Dispatch Volume 2

• DM2 Patients and Statins: New Research
• The Christopher Project Patient Survey Launched
• 500 Voices Campaign Launches with SpeakingPhoto
• Movement in the House on the MD-CARE Act

June 2014 Dispatch Volume 1

• A Father's Story in Honor of Father's Day
• Fundraisers Exceed Expectations!
• Help Shorten the DM Diagnostic Odyssey: Volunteer with the Medical School Roadshow
• Update: Isis Phase I Clinical Trial

May 2014 Dispatch Volume 2

• MDF Advances DM Research with Fund-A-Fellow Grants
• Stanford University Announces the Creation of Myotonic Dystrophy Biobank
• MDF Dysphagia Recipe Contest!

May 2014 Dispatch Volume 1

• Amy Ream Doesn't Let DM Define Her
• River's Ride: Father and Son Cycle Across Iowa
• Join the Grandparents Campaign!

April 2014 Dispatch Volume 2

• DM Research Studies on Facial Recognition and Sleep Disturbances
• MDF Announces Fund-A-Fellow Success!
• Dash & Dine for DM

April 2014 Dispatch Volume 1

• Erich Maurer: Seeing DM From a New Perspective
• Expanded Programming at the 2014 MDF Annual Conference
• Learn How You Can Help Bring DM to Capitol Hill

March 2014 Dispatch Volume 2

• Dr. Matt Disney Talk About DM2 Research
• Genetic Testing for Myotonic Dystrophy
• Pregnancy Study Seeks Participants
• Orphan Drug Designation Given to a DM Drug Under Development at Valentia Biopharma
• Muscles for Myotonic 2014

March 2014 Dispatch Volume 1

• The Reebers: Casting Light on DM2
• Save the Date for the 2014 MDF Annual Conference
• MDF Goes to Washington
• Webinar: Living with DM2
• Join Our Virtual Caregiver Support Group

February 2014 Dispatch

• Meet DM Pioneer Dr. Richard Moxley
• Rare Disease Day: Help Us Advocate for DM
• Webinar: Tips for Parents Caring for Children with Congenital DM1
• First-Annual Stanford DM Information Meeting a Success

January 2014 Dispatch Volume 2

• New Studies Shed Light on Cardiac Complications and Toxic RNA
• Help with Rare Disease Day Advocacy
• Referral List Renamed, Adds Functionality
• Annual Offsite Meeting
• "The Facts" Now Available in French