2017 MDF Annual Conference Session Videos and Presentations

The 2017 MDF Annual Conference was held in San Francisco, CA September 8-9, 2017. Videos and presentations from the conference are available via the links below in order of their presentation at the Conference. Caregiver and support group meetings were not taped and do not have presentations.

If a link is not available, the presentation and/or video has not been received or is not yet available. Please check back or contact Myotonic for more information.

Resources & Recordings

All About the Heart: Updated Research and Symptom Management

Matthew Wheeler, MD, PhD, Stanford University

Orthotics and Mobile Devices

Tina Duong, MPT, PhDc, Stanford University

DM and Nutrition: Debunking Myths and Developing Eating Strategies

Rebecca Hurst-Davis, MS, RD, Intermountain Homecare and Hospice

Help for DM Parents: Educational Tools and Resources for Ages 1 to 21

Laura Kaloi, McKeon Group

DM 101: Getting a Handle on the Basics

Johanna Hamel, MD, University of Rochester

Becoming a DM Advocate: Community Training

Kevin Brennan, Faegre Bakers Daniel Consulting

IDMC-11 and MDF Annual Conference Awards Ceremony

Kelly Tribute Video

Bringing the Patient Voice to CNS Targeting Drug Development in DM

Video 1Video 2Session Presentation, CNS Overview Presentation
James Valentine, JD, Hyman, Phelps & McNamara; John Day, MD, PhD, Community panelists

DM Sleep Disorders: Updated Research and Management Strategies

Video, Presentation
John Day, MD, PhD, Stanford University

DM, Cancer and Aging: What Patients Should Know

Shahinaz Gadalla, MD, PhD; Mark Greene, MD; National Institutes of Health

DM and Mental Health: Managing Anxiety, Depression and Other Symptoms

Melissa Dixon, PhD, University of Utah

MDF Research Update: What's Been Accomplished, What's Next

John Porter, PhD, Myotonic Dystrophy Foundation

DM and Dental Care: The Neglected Risk

Darcy Trill, RDHAP, Goldenscalers Mobile Dentristy

DM2 Symptom Management

Dr. Schoser's presentation included unpublished information and is therefore not available
Benedikt Schoser, MD, PhD, Ludwig Maximilians University

Beyond General Anesthesia: Opiates and Other Pain Meds

VideoPresentation - Sampson  
Jacinda Sampson, MD, PhD, Stanford University

Presentation - Bowler
Ian Bowler, MD, MDSG

Expanding the Pipeline: Industry Updates on Drug Development

VideoPresentation - Mignon
Laurence Mignon, PhD, Ionis Pharmaceuticals;
Joseph Horrigan, MD, AMO Pharma;
Matthew Disney, PhD, Expansion Therapeutics

Conference Question and Answer Session

Various professionals

Live Performance

Recording Artist and Musician Eric Hutchinson


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