Home / 2018 MDF Annual Conference Session Videos and Presentations

2018 MDF Annual Conference Session Videos and Presentations

The 2018 MDF Annual Conference took place Friday, September 14, 2018, through Saturday, September 15, 2018, in Nashville, TN. This year’s conference featured networking, symptom management and research update sessions for community members and a full-day closed research and drug development track for academic and industry professionals. More than 400 families, clinicians, researchers, industry representatives and caregivers attended to improve the lives of people living with myotonic dystrophy.

Videos and presentations from the conference are available via the links below in order of their presentation at the Conference. Caregiver and support group meetings were nto taped and do not have presentations. If a link is not available, the presentation and/or video has not been received or is not yet available. Please check back or contact MDF for more information.

Gut Instincts: GI Symptom Management

Presentation
Leila Neshatian, MD, MSc, Stanford University

Breathe Easy: Respiratory Symptom Management

Presentation
Valeria Sansone, MD, NEuroMuscular Omnicentre (NEMO)

DM 101: Getting a Handle on the Basics

Presentation
Nicholas Johnson, MD, Viriginia Commonwealth University

Staying Strong: DM & Exercise

Presentation
Katy Eichinger, PT, PhD, Stanford University

Becoming a DM Advocate: Community Update & Training

Presentation    Embedded Video of Senator Durbin
Jenn Dale, Faegre Baker Daniels

Living with DM: Patients Report on Changes Over Time

Video Recording    Presentation
Facilitator: Charles Thornton, MD, University of Rochester

Strategies for Managing Progression

Video Recording    Presentation
Cynthia Gagnon, PhD, OT, Université de Sherbrooke

Video Recording    Presentation
Missy Dixon, PhD, University of Utah

Consensus-based Care Recommendations: What Do They Mean for You?

Video Recording    Presentation
Facilitator: Jacinda Sampson, MD, PhD, Stanford University

Accelerating the Search for Therapies: What's Happening, What's Next

Video Recording    Presentation
Elizabeth Ackermann, PhD, Myotonic Dystrophy Foundation

Industry Updates on Drug Development

Video Recording    Presentation
Ranjan Batra, PhD, Locana

Video Recording    Presentation
Matthew Disney, PhD, Expansion Therapeutics

Video Recording    Presentation
Joseph Horrigan, MD, AMO Pharma Ltd.

Video Recording    Presentation
Laurence Mignon, PhD, Ionis Pharmaceuticals

Conference Q&A

Video Recording
Cynthia Gagnon, PhD, OT, Université de Sherbrooke
Laurie Gutmann, MD, University of Iowa
Charles Thornton, MD, University of Rochester
Laurence Mignon, PhD, Ionis Pharmaceuticals

 

 

 

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