2024 MDF Support Group Facilitator Application 

Thank you for your interest in becoming a volunteer Support Group Facilitator (SGF) with the Myotonic Dystrophy Foundation (MDF)!

SGFs play a vital leadership role in offering support to the Myotonic Dystrophy (DM) community and connecting community members to MDF and its many resources. We are grateful for the dedication and commitment of our SGFs and look forward to reviewing your application.

What are SGF's?

SGFs are volunteer community leaders who receive training and support from MDF. Their role is to provide a place for those living with DM and their caregivers to confidentially share their experiences, learn from others also impacted by DM, and access resources and information to help improve quality of life. It is important to note that SGFs are not trained medical professionals and cannot give medical advice.

Support groups are offered in-person and/or virtually depending on the type of support group and the location. All of our upcoming virtual meetings are listed online.

SGF Qualifications & Responsibilities

  • SGFS must be a person with a genetic diagnosis or a caregiver of someone living with a genetic diagnosis of DM1 or DM2.
  • SGFs must commit to hosting at least 4 virtual and/or in-person support groups each year.
  • SGFs must adhere to MDF guidelines and code of conduct.

Click here for a full list of requirements for MDF SGFs.

Thank You to Our SGF Training Sponsor

Special thanks to our 2024 SGF Training Sponsor, Avidity Biosciences, for helping expand our support programs! By sponsoring our Support Group Facilitator Training Program, Avidity Biosciences, is helping MDF provide the training, resources, and ongoing support needed to ensure our facilitators are well-prepared leaders who will guide and empower the myotonic dystrophy community.

2024 MDF Support Group Facilitator (SGF) Application

Please review and complete the application below.


Section 1: Contact Information

Section 2: Personal Profile

Section 3: Availability & Communication

SGFs are important members of the MDF team and the greater DM community. SGFs often are a friendly face that community members turn to with questions and to help them navigate their day-to-day journey.

Because this role is so vital to the well-being of the larger community, there are some requirements that must be met in order to become an SGF:

  • SGFs are required to host at least four meetings per year in person and/or virtually.
  • SGFs are required to participate in MDF-led training; this year, an SGF training session is being held in Chicago from Friday, April 26 - Sunday, April 28, 2024 (while in-person is storngly preferred – MDF will cover travel expenses – attendance can be in person or virtual).
  • SGFs are required to attend a monthly 1-hour SGF-only administrative group meeting.
  • SGFs are asked, but not required, to attend the MDF Annual or Regional Conference each year.
  • Meetings must adhere to certain guidelines and procedures. If selected to become an SGF, please note these guidelines will be reviewed with you prior to your first meeting.

Click here for a full list of requirements for MDF SGFs.

Section 4: Support & Resources