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2019 MDF Annual Conference Agenda

Monday, March 6

  • 10:00 am to 10:15 am
    Coffee Break
  • 6:15 pm to 7:15 pm
    Session 1
    Session Test One

Tuesday, March 7

  • 7:00 pm to 8:00 pm
    Making do with Nothing

Thursday, September 7

  • 3:00 pm to 7:00 pm
    Thursday Registration
  • 4:00 pm to 5:00 pm
    First Timers' Tea

Friday, September 8

  • 7:30 am to 9:30 am
    Breakfast
  • 8:00 am to 5:30 pm
    Friday Registration
  • 10:00 am to 10:50 am
    Breakout Sessions: Selecting High-quality Caregivers; DM and Cardiac Care
  • 10:00 am to 3:00 pm
    JOA Program
  • 10:00 am to 2:00 pm
    Friday Research & Vendor Fair
  • 11:00 am to 11:50 am
    Breakout Sessions: Congenital Family Roundtable; Male Caregivers; Orthotics and Mobile Devices
  • 12:00 pm to 1:00 pm
    Lunch
  • 12:00 pm to 1:00 pm
    Support Group Facilitators Lunch
  • 1:00 pm to 1:50 pm
    Breakout Sessions: The DM2 Patient Experience; DM Nutrition; Help for DM Parents
  • 2:00 pm to 4:00 pm
    Accessing State and Federal Resources: Expert Workshop
  • 2:00 pm to 2:50 pm
    Breakout Sessions: Female Caregivers; DM 101; Becoming a DM Advocate
  • 3:30 pm to 4:15 pm
    Chair Tap Dance Lesson
  • 4:30 pm to 5:30 pm
    Break
  • 5:30 pm to 6:30 pm
    Opening Reception
  • 5:30 pm to 7:30 pm
    Opening Reception, Poster Session & Vendor Showcase

Saturday, September 9

  • 8:00 am to 5:00 pm
    Saturday Registration
  • 8:00 am to 9:00 am
    Breakfast
  • 9:00 am to 3:00 pm
    Saturday Research & Vendor Fair
  • 9:00 am to 9:45 am
    IDMC-11 Awards Presentation
  • 9:45 am to 10:00 am
    Coffee Break
  • 10:00 am to 1:00 pm
    Bringing the Patient Voice to CNS-Targeting Drug Development in Myotonic Dystrophy
  • 12:00 pm to 1:00 pm
    Bringing the Patient Voice to CNS-Moderated Lunch Discussion
  • 12:00 pm to 1:00 pm
    Lunch
  • 1:00 pm to 1:50 pm
    Breakout Sessions: DM Sleep Disorders; DM, Cancer and Aging; DM and Mental Health
  • 2:00 pm to 2:50 pm
    Breakout Sessions: MDF Research; Dental Care; DM2 Research & Pain Management
  • 3:00 pm to 3:30 pm
    Beyond General Anesthesia: Opiates and Pain Medications
  • 3:30 pm to 4:50 pm
    Expanding the Pipeline: Industry Updates on Drug Development
  • 5:00 pm to 5:15 pm
    Conference Q&A
  • 5:45 pm to 6:45 pm
    Closing Dinner Party and Performance
  • 5:45 pm to 7:30 pm
    Closing Finale and Dinner Party: Live Performance with Eric Hutchinson

Tuesday, October 31

  • 7:45 pm to 8:00 pm
    Costume Party

Friday, September 14

  • 8:30 am to 5:30 pm
    Friday Registration
  • 9:00 am to 9:50 am
    Support Group Facilitators Breakfast (Closed)
  • 10:00 am to 10:50 am
    First Timers' Tea
  • 12:30 pm to 1:00 pm
    Conference Welcome
  • 1:00 pm to 1:50 pm
    Breakout Sessions: Congenital Community Panel; The DM2 Patient Experience Community Panel; Gut Instincts: GI Symptom Management
  • 1:00 pm to 4:50 pm
    JOA Program
  • 1:00 pm to 3:50 pm
    Research & Vendor Showcase
  • 2:00 pm to 2:50 pm
    Breakout Sessions: DM 101: Getting a Handle on the Basics; Breath Easy: Pulmonary Symptom Management; Male Caregivers Community Panel; Female Caregivers Community Panel
  • 3:00 pm to 3:50 pm
    Poster Session
  • 4:00 pm to 4:50 pm
    Breakout Sessions: Patient Report Out on Cannabis for Symptom Management; Staying Strong: DM and Exercise; Becoming a DM Advocate: Community Update and Training
  • 5:00 pm to 5:50 pm
    Break
  • 5:00 pm to 5:50 pm
    Chair Tap Adaptive Dance Class
  • 6:00 pm to 8:00 pm
    Opening Reception

Saturday, September 15

  • 7:00 am to 8:50 am
    Breakfast
  • 8:00 am to 5:00 pm
    Saturday Registration
  • 9:00 am to 3:20 pm
    Research & Vendor Showcase 2
  • 9:00 am to 10:50 am
    Living with DM: Patients Report on Changes Over Time
  • 9:00 am to 2:20 pm
    JOA Program 2
  • 11:00 am to 11:50 am
    Strategies for Managing Progression
  • 12:00 pm to 12:50 pm
    DM2 Research Update Lunch
  • 12:00 pm to 12:50 pm
    Lunch
  • 1:00 pm to 2:20 pm
    Consensus-based Care Recommendations: What Do They Mean for You?
  • 2:20 pm to 2:40 pm
    Break
  • 2:40 pm to 3:15 pm
    Accelerating the Search for Therapies: What's Happening, What's Next
  • 3:15 pm to 3:30 pm
    Conference Challenge
  • 3:40 pm to 4:50 pm
    Industry Updates on Drug Development
  • 5:00 pm to 5:15 pm
    Conference Q&A
  • 5:15 pm to 6:00 pm
    Break - No Host Cocktail Hour
  • 6:00 pm to 8:00 pm
    Closing Dinner, Line Dancing Class & Dance Party

Friday, September 13

  • 9:00 am to 5:00 pm
    Friday Registration, First Timers' Tea
  • 10:00 am to 7:30 pm
    Juvenile-onset Adult (JOA) Program Friday
  • 11:00 am to 12:00 pm
    Adaptive Chair
  • 12:00 pm to 1:00 pm
    Break
  • 1:00 pm to 1:45 pm
    Conference Welcome
  • 2:00 pm to 4:00 pm
    Female Caregivers Roundtable, Going to School with Myotonic Dystrophy: Understanding Special Education & I.D.E.A., Emergency Preparedness, DM101: Understanding the Disease Basics
  • 3:00 pm to 4:00 pm
    Congenital Caregivers Roundtable, Myotonic Dystrophy & the World of Work, Grassroots Advocacy-MDF Needs You!
  • 4:00 pm to 5:00 pm
    Cardiac Considerations for DM2, Male Caregivers Roundtable, Adaptive Chair Yoga, DM Genetics & Family Planning
  • 5:00 pm to 5:30 pm
    Break
  • 5:30 pm to 7:30 pm
    Welcome Reception & Research Poster Session

Saturday, September 14

  • 7:00 am to 6:00 pm
    Juvenile-onset Adult (JOA) Program Saturday
  • 7:00 am to 8:00 am
    Breakfast
  • 8:00 am to 3:00 pm
    Research & Vendor Showcase
  • 9:00 am to 5:00 pm
    Saturday Registration, Occupational Therapy: the Latest Tools & Resources, Financial Planning & DM, DM Behavioral & Mental Health: Understanding Symptoms & Management Strategies
  • 10:00 am to 12:00 pm
    Palliative Care, Pain & DM2: Updated Information on Symptoms & Coping Strategies, Creating Your Clinical Care Team, Exercise, Nutrition & Speech: Enhancing Functional Ability
  • 11:00 am to 12:00 pm
    Mindfulness as a Disease Management Strategy, DM2 Research, Sleep
  • 12:00 pm to 1:00 pm
    Lunch
  • 1:00 pm to 2:00 pm
    Cardiac General Session
  • 2:00 pm to 3:20 pm
    Patients Report Out: Living with DM over 50
  • 3:20 pm to 3:30 pm
    Conference Challenge
  • 3:30 pm to 5:00 pm
    Industry Updates and Q&A
  • 5:00 pm to 6:15 pm
    Cocktail Hour
  • 6:15 pm to 8:30 pm
    Closing Dinner & Dance Party

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