Ask-the-Expert: Palliative Care & DM
Friday, December 12th
11:00 AM Pacific / 2:00 PM Eastern
Thank you to our 2025 Community Education Webinar Series Sponsors, Avidity Biosciences and Dyne Therapeutics!
Join us for a special Ask the Expert session, “Palliative Care and DM: Living Well at Every Stage,” presented in partnership with Cure DM, a UK charity dedicated to supporting individuals and families affected by myotonic dystrophy (DM). Click here to find all our upcoming Ask the Expert dates and previously recorded sessions. >>>
This webinar will explore how palliative care can enhance quality of life for people living with DM and their loved ones by focusing on physical comfort, emotional support, and practical guidance at every stage of the journey. Click here to find all our upcoming Ask the Expert dates and previously recorded sessions. >>>
Hear from Dr. Cynthia DeSoi, a hospice and palliative care physician inspired by her own family’s experience with DM, and Emma-Jayne Ashley, Founding Trustee of Cure DM and a passionate advocate for improving care and support for families living with congenital DM (CDM). Discover how palliative care approaches can help you or your loved one live more fully with dignity and compassion while managing the challenges of DM.
Register once and you can join any of our 2025 Ask the Expert webinars! Join us at our next Ask the Expert webinar! Click here to find all our upcoming Ask the Expert dates and previously recorded sessions. >>>
About the Presenters
Dr. Cynthia DeSoi
Hospice & Palliative Care Physician
Dr. Cynthia DeSoi is a hospice and palliative care physician with over 40 years of medical experience. Formerly a nephrologist, she was drawn to palliative care in 2020 after her family was directly impacted by myotonic dystrophy. Inspired by her daughter and husband's diagnosis with Type 1 myotonic dystrophy, this experience has cemented her commitment to ensuring that patients and families facing serious, complex conditions receive compassionate, holistic care centered on their needs and values.
Emma-Jayne Ashley
Founding Trustee, Cure DM
Emma-Jayne Ashley is a Founding Trustee of Cure DM and a knowledgeable, experienced patient advocate. As the mother of a son born with congenital myotonic dystrophy, she has dedicated her career to improving daily living, quality of life, and access to palliative and end-of-life care for families affected by DM.
Questions or comments? Contact MDF at 415-800-7777 or at info@myotonic.org.