Conference Man

Myotonic Dystrophy Anesthesia Guidelines

Share the DM Anesthesia Guidelines with your Doctor! Individuals living with myotonic dystrophy can have severe reactions to anesthesia and should be monitored carefully whenever anesthesia is administered. Download the one page Anesthesia Quick Reference Guide!

Download DM-Specific Resources

Explore MDF's resources for people living with DM and others involved in their care, safety, and happiness. View all our DM Toolkits & Publications!

Myotonic Dystrophy News

September 26,2025

Above & Beyond the Finish Line: Pat Cornell’s Record-Setting Motorcycle Ride for Myotonic Dystrophy Awareness

On September 2, 2025, Patrick “Pat” Cornell—known to many as Vroom Old Man—rolled into Indian Motorcycle of Southeastern Virginia in Newport News, VA. There, he officially crossed the finish line of his original goal: 125,000 miles in 125 days, a record-breaking motorcycle ride that united riders, rare disease advocates, and families affected by myotonic dystrophy (DM).

September 26,2025

2025 Gala Reaches New Heights with Record-Setting Contributions!

Thank You for Helping Us Reach New Heights at the 2025 MDF Gala! MDF is thrilled to announce that our 2025 Gala raised a record-setting $2 million to accelerate research, expand care, and strengthen support for families living with myotonic dystrophy (DM) around the world!

September 26,2025

Thank You for Sharing Your Voice in the DM INSIGHT Surveys

The Myotonic Dystrophy Foundation (MDF) extends a heartfelt thank you to everyone who participated in our DM INSIGHT surveys. Your input is essential to helping us better understand the real-world experiences of people living with myotonic dystrophy (DM1 or DM2) and their healthcare providers.

September 26,2025

The World Glows Green in Celebration of International DM Awareness Day 2025!

In celebration of the 5th Annual International Myotonic Dystrophy Awareness Day, our incredible community members and partners from all around the world dressed for the occasion and lit their local and national monuments in green.

September 24,2025

Understanding Myotonic Dystrophy: Inheritance of Myotonic Dystrophy Type 2 (DM2)

MDF is excited to introduce “Understanding Myotonic Dystrophy”, a new series of short educational animations designed to educate people living with myotonic dystrophy (DM) and their healthcare providers! Our third animation “Understanding Myotonic Dystrophy – Inheritance of Myotonic Dystrophy Type 2 (DM2)”, explains how DM2 is passed down from generation to generation and highlights the importance of genetic testing.

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.

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