Agenda Category
Agenda Date Time
-
Agenda Chairs
Michele Boardman, MA, CPWIC, CESP, LPC
Jenn M. Dale, MA
Agenda Context
Agenda Detail
Agenda Detail Item
Congenital Caregivers Roundtable
Facilitated support group discussion for caregivers of congenital and childhood-onset myotonic dystrophy patients.
Agenda Detail Time
3:00pm
To Time
4:00pm
Agenda Detail Item
Myotonic Dystrophy & the World of Work with Michele Boardman, MA, CPWIC, CESP, LPC
An employment expert will review strategies, tips and information on how to navigate the employment process while living with myotonic dystrophy, including job searching, resume building, interviewing and more.
Agenda Detail Time
3:00pm
To Time
4:00pm
Agenda Detail Item
Grassroots Advocacy-MDF Needs You! with Jenn M. Dale, MA
Join MDF’s public policy consultant and advocacy expert to learn how you can educate your members of Congress about myotonic dystrophy and advocate for important research and care legislation.
Agenda Detail Time
3:00pm
To Time
4:00pm