Our industry partners working towards therapies and a cure for myotonic dystrophy are interested in learning more about our community. They hope to connect with community members via one hour video calls to help evaluate their research strategies.
Community members will share their journey (or the journey of their child) including symptom onset, diagnosis, health-related quality of life impact, and management. Our partners will provide a brief pre-interview questionnaire to help facilitate the interview discussion as well as a post-interview survey. Depending on the commitment, participants may be offered compensation for their time. Space is limited, not all applicants will be contacted for an interview.
If you are interested in this opportunity to help further drug development efforts, please fill out this short questionnaire. We will share your information with our Industry Partners and if selected they will contact you to participate!