Belen Esparis uses her medical expertise to help her daughter Emily navigate life with DM. "I just want her to keep trying," she says. The Esparis-Kugler family has raised more than $35,000 for MDF and DM research since they learned about the disease.
An active MDF advocate, fundraiser and community member, Teresa Schmertman shares her approach to life and living with DM. "It's about a passion for the cure," she says, "second only to my passion for my family."
Alain Geille, one of the organizers of IDMC-10, brings a real understanding of DM to both IDMC and the Association Française Contre les Myopathies, as both his son and wife are living with DM1.
Sarah Berman and her daughter Zoé embrace the challenges they are faced with, and find strength and support from the MDF community.
Meet Larry Lord, architect and community volunteer living in Atlanta, Georgia, who is a single father of two grown sons living with childhood-onset DM.
Three years ago, Sarah and Sam Pontifex of Adelaide, Australia, had never heard of myotonic dystrophy, but their three children were experiencing shared symptoms that they knew could not be the result of mere coincidence.
In November of 2012, Christian Lundy of Ottawa, Canada, was hospitalized with pneumonia. With his wife Kelly at his side, Christian endured weeks of hospitalization and intubation.
Laura Gershenson is a high school science teacher, wife, and mother of two small children living in Dallas, Texas. She was diagnosed with DM in 2011 and found her way to MDF shortly afterwards.
“My condition is not who I am. It does not define me.” This is one of many affirmations that Amy Ream adopted after being diagnosed with myotonic dystrophy 17 years ago. “I’ve been obsessed about retaining my quality of life, and being stubborn has benefitted me greatly,” states Amy.