Myotonic Dystrophy: Family Stories

Martha Montag Brown: A Recruiter Gets Recruited

Published on Tue, 03/06/2018

As Matthew Brown listened to his cousin Emily describe the symptoms that led to doctors diagnosing her with having multiple sclerosis, he grew concerned. The problems she described—an inability to relax her hand, a freezing of her tongue that made it impossible to talk at times, and gastrointestinal issues—were the same ones he had been experiencing.

Linda Marshall: A Journey of Grace

Published on Tue, 02/06/2018

Linda Marshall has written a moving overview of her struggles to find a diagnosis for the problems her children faced, and the particular impact of brain-related symptoms on her family.

Tom McPeek - Staying Positive

Published on Tue, 12/05/2017

Tom McPeek was an award-winning dog trainer and a corrections professional before his DM2 kicked in.

A Journey from Nurse to Caregiver

Published on Thu, 04/13/2017

Even though Donna Boulmay spent a career as a nurse before retiring, she lived most of her adult life in the midst of a medical mystery that had shaped much of her family’s existence. That changed shortly after her grandson Jackson turned five years old.

Every Body Counts: Zenica Sanford

Published on Tue, 01/24/2017

Participation in research studies and clinical trials is critical to finding therapies for myotonic dystrophy. As part of the Every Body Counts! campaign, Myotonic will highlight DM community members who have proactively participated in research studies and clinical trials. Read about Zenica Sanford.

Every Body Counts: Mary Dowdle

Published on Fri, 01/20/2017

Mary Dowdle, a community member living in Virginia, says that participating in research has been a great way to feel like she's contributing to Care and a Cure for DM, and it's been interesting too!