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Digital Academy: Clinical Trials and Drug Approval

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Clinical Trials Training

The Myotonic Dystrophy Foundation presents a training video for clinical trials participants, presented by Dr. Bruce Wentworth of Genzyme, and Jeanne Dekdebrun and Elizabeth Luebbe of the University of Rochester.

4/16/18 video
The Clinical Trial: Real-Life Experiences (2013 MDF Annual Conference)

Pat Furlong, CEO of Parent Project Muscular Dystrophy, will share the experiences of Duchenne community members who have participated in clinical trials.

(View a PDF of Ms. Furlong's presentation)

5/15/19 video
The U.S. Drug Testing & Approval Process (2013 MDF Annual Conference)

Dr. Doug Kerr, M.D., Ph.D., of Biogen-Idec, describes the U.S. process for taking a drug from testing to approval.

(View a PDF of Dr. Kerr's presentation)

5/17/19 video
Challenges of DM

People living with myotonic dystrophy have a frank discussion about the biggest challenges facing their lives.

4/16/18 video

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