Prioritizing Heart Health for the DM Community

For individuals living with myotonic dystrophy (DM), heart health is especially important, as cardiac issues can pose significant risks. MDF is here to help you understand, manage, and protect your heart health with these valuable resources:

• Myotonic Dystrophy and the Heart: A Community Guide
  For individuals living with myotonic dystrophy, heart or “cardiac” issues can pose a serious threat to their health. Since the heart is a muscle, people living with myotonic dystrophy type 1 (DM1) or type 2 (DM2) may experience cardiac issues. This resource aims to help people living with DM understand heart health risks and how they are managed.
• Ask the Expert Webinar: Myotonic Dystrophy and the Heart
  Learn from world-class cardiologist, Dr. William J. Groh, author of MDF’s DM and the Heart Community Guide, as he shares his expertise on DM and the heart and answers questions from our community.
• How Myotonic Dystrophy Affects the Heart
  Explore insights from Dr. Daniel Cruz’s session at the 2024 Los Angeles MDF Regional Conference.
  • Don’t miss Dr. Cruz’s upcoming session at the 2025 MDF Conference, where he will dive even deeper into DM1 and the heart. View the Conference Agenda!
• Clinical Care Recommendations for Cardiologists
  Share these evidence-based guidelines with your care team to ensure you're receiving the best possible treatment based on the latest recommendations:
  • English Version: Consensus-based Care Recommendations for Cardiologists Treating Adults with Myotonic Dystrophy Type 1
  • Spanish Version: Recomendaciones por consenso para cardiólogos que tratan adultos con distrofia miotónica tipo 1

Questions?

If you have any questions about heart health and myotonic dystrophy, or if you need assistance with our resources, we’re here to help! Please don’t hesitate to reach out to MDF at info@myotonic.org.