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Female Caregivers Roundtable; Going to School with Myotonic Dystrophy: Understanding Special Education & I.D.E.A.; Emergency Preparedness; DM101: Understanding the Disease Basics

Agenda Category
Agenda Date Time
-
Agenda Chairs
Kathy Boundy, JD
Darlene Shelton
Lauren Elman, MD
Sarah Stoney, MSW, LSW
Agenda Detail
Agenda Detail Item

Female Caregivers Roundtable
Facilitated support group discussion for female caregivers of myotonic dystrophy patients.

Agenda Detail Time
2:00pm
To Time
3:00pm
Agenda Detail Item

Going to School with Myotonic Dystrophy: Understanding Special Education & I.D.E.A., with Kathy Boundy, JD & Sarah Stoney, MSW, LSW
Listen to a panel of parents and an expert discuss I.D.E.A., U.S. legislation directing special education programs, and how to navigate transitions through school for children with myotonic dystrophy.

Agenda Detail Time
2:00pm
To Time
4:00pm
Agenda Detail Item

Emergency Preparedness with Darlene Shelton
Learn how you can successfully manage medical emergencies. The speaker is the founder of an alliance focused on emergency preparedness for rare diseases and will share great information about emergency protocols for those with special needs.

Agenda Detail Time
2:00pm
To Time
3:00pm
Agenda Detail Item

DM101: Understanding the Disease Basics with Lauren Elman, MD
A session for first-time attendees and those interested in a refresher on DM genetics, symptom burden and disease management strategies.

Agenda Detail Time
2:00pm
To Time
3:00pm