Myotonic Dystrophy Resources Referral Form

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Myotonic Dystrophy News

March 17, 2023

Research Fellow Feature: Emma Shea

MDF is proud to announce Emma Shea of the University of Florida, Gainesville, Florida, US as one of MDF UK's 2023 Fellowship Recipients!

March 17, 2023

Research Fellow Feature: Tatiana Koike, PhD

MDF is proud to announce Tatiana Koike, PhD of the Université de Montreal, Quebec, Canada as one of MDF UK's 2023 Fellowship Recipients!

February 28, 2023

Global Alliance of 57+ Myotonic Dystrophy Focused Organisations Unite to Raise Awareness on Rare Disease Day 2023

On Rare Disease Day 2023, the Global Alliance for Myotonic Dystrophy Awareness proudly stands together to celebrate the remarkable strength and resilience of the myotonic dystrophy community. With over 57 organisations focused on advancing the understanding of and care for this rare genetic disorder, the Alliance continues to be a beacon of hope for people living with myotonic dystrophy (DM), their families, and healthcare professionals around the globe.

February 17, 2023

Welcome Mindy Buchanan, Director of Programs

We are overjoyed to welcome Mindy Buchanan, to the team! Dedicated to working with populations affected by highly variable diseases, Mindy brings with her nearly twenty years of experience in non-profit and academic medical center settings, including a wealth of knowledge on leading educational, psychosocial, and peer-to-peer support programs.

February 17, 2023

Research Fellow Feature: Mackenzie Davenport, PhD

MDF is proud to announce Mackenzie Davenport, PhD of the University of Florida, Gainesville, Florida, US as one of MDF UK's 2023 Fellowship Recipients!

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Myotonic Dystrophy Resources Referral Form