Multi-Disease Organizations
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National Organization of Rare Disorders (NORD)
NORD is an organization that provides information on rare disease issues, legislation, and related topics. -
Online Mendelian Inheritance in Man (OMIM)
OMIM is a database of human genes and genetic disorders
Neuromuscular Disorder Organizations
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Cure CMD
Cure CMD’s mission is to bring research, treatments and in the future, a cure for Congenital Muscular Dystrophies. Cure CMD will achieve this mission by working globally together with dedicated parent, government and research advocates. By focusing on this mission, Cure CMD will find and fund high potential research and clinical trials. Success will be determined by clinical applications that improve the lives of those afflicted with CMD’s.
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Muscular Dystrophy Association (MDA)
The MDA is a voluntary health agency - a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans.