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Palliative Care: Improving Quality of Life at Every Stage; Pain & DM2: Updated Information on Symptoms & Coping Strategies; Creating Your Clinical Care Team; Exercise, Nutrition & Speech: Enhancing Functional Ability

Agenda Category
Agenda Date Time
-
Agenda Chairs
Doris Leung, MD, PhD
Jacinda Sampson, MD, PhD
Katy Eichinger, PhD, DPT
Leslie Vnenchak, MA, CCC-SLP
Robin Meyers, RD, MPH, LDN
Agenda Detail
Agenda Detail Item

Palliative Care: Improving Quality of Life at Every Stage
Learn more about the importance of palliative care in managing myotonic dystrophy, including symptom management strategies that will help those living with DM improve their quality of life now.

Agenda Detail Time
10:00am
To Time
11:00am
Agenda Detail Item

Pain & DM2: Updated Information on Symptoms & Coping Strategies with Doris Leung, MD, PhD
Come to this session to understand the science of pain in DM2 and learn strategies to successfully manage it. This session is recommended specifically for anyone diagnosed with DM2 and their caregivers.

Agenda Detail Time
10:00am
To Time
11:00am
Agenda Detail Item

Creating Your Clinical Care Team with Jacinda Sampson, MD, PhD
Learn about the importance of, and strategies for, creating the right medical team for your or a family members’ optimal myotonic dystrophy care.

Agenda Detail Time
10:00am
To Time
11:00am
Agenda Detail Item

Exercise, Nutrition & Speech with Katy Eichinger, PhD, DPT, Leslie Vnenchak, MA, CCC-SLP, and Robin Meyers, RD, MPH, LDN
This rehabilitation panel will review current research and strategies for managing DM symptoms through exercise, speech and nutrition.

Agenda Detail Time
10:00am
To Time
12:00pm