Advocate with MDF!
Patient Advocacy & Orphan Drug Workshop
Join MDF staff, community members and the California Rare Action Network for an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions.
Date: Saturday, March 9, 2019
Time: 8:30 AM to 3:00 PM
Location: Hyatt Regency Sacramento
1209 L Street
Sacramento, CA 95814
Register Now!
MDF staff and community members will be attending this event – come meet and connect with your fellow DM community members. MDF materials will be available! Additional event details:
- All advocates are invited to attend and participate in the patient advocacy and orphan drug workshop
- This workshop will feature an opportunity to speak directly with members of Congress from California about the Orphan Drug Act
- This event is hosted at no cost to participants.
- Light breakfast and lunch will be provided.
Get Free Tickets!
For more information about this event, please contact MDF Program Director Michael Knaapen at michael.knaapen@myotonic.org or at 415-800-7777.
Date(s)
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2019-03-09 00:00:00
2019-03-09 00:00:00
Patient Advocacy & Orphan Drug Workshop - Sacramento, CA
To know more about this Event, Just go to: https://www.myotonic.org/patient-advocacy-orphan-drug-workshop-sacramento-ca
Location
Myotonic Dystrophy Foundation
info@myotonic.org
America/Vancouver
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