Home / Patient Advocacy & Orphan Drug Workshop - Sacramento, CA

Patient Advocacy & Orphan Drug Workshop - Sacramento, CA

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Patient Advocacy & Orphan Drug Workshop

Join MDF staff, community members and the California Rare Action Network for an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions.

Date: Saturday, March 9, 2019

Time: 8:30 AM to 3:00 PM

Location: Hyatt Regency Sacramento

1209 L Street
Sacramento, CA 95814

Register Now!

MDF staff and community members will be attending this event – come meet and connect with your fellow DM community members. MDF materials will be available! Additional event details:

  • All advocates are invited to attend and participate in the patient advocacy and orphan drug workshop
  • This workshop will feature an opportunity to speak directly with members of Congress from California about the Orphan Drug Act
  • This event is hosted at no cost to participants.
  • Light breakfast and lunch will be provided.

Get Free Tickets!

For more information about this event, please contact MDF Program Director Leah Hellerstein at leah.hellerstein@myotonic.org or at 415-800-7777.


Saturday, March 9, 2019





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